tag:blogger.com,1999:blog-1738070699265994888.post1549712351248731147..comments2024-02-19T02:07:53.121-08:00Comments on Agenesis Corpus Callosum: Therapy ThoughtsSandie-Matthew's Momhttp://www.blogger.com/profile/11713990436763822654noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-1738070699265994888.post-45415118329783437382013-05-17T22:06:28.044-07:002013-05-17T22:06:28.044-07:00Hello Fatima in Morocco,
Thank you for your comm...Hello Fatima in Morocco, <br /><br />Thank you for your comment about your 11 year old daughter who has partial ACC. I understand your English very well. I'm so sorry that your daughter is struggling with social rules and skills and that she doesn't have friends. Having friends (and at least one very good friend in school, and in everyday life) is so important. Please know that your daughter is not alone and that there are a lot of children with ACC who also have the same challenges as your daughter is having. <br /><br />Some kids who have ACC (in the USA) receive help in school by attending weekly sessions led by a school psychologist and/or a speech therapist to work on learning social skills. Some parents choose to take their child to a private psychologist to work with their child on social skills. Social Stories are another method that can sometimes be effective in helping a child with ACC learn how to interact in different types of social situations. <br /><br />I don't know if you have any support or if you are involved in an ACC support group. <br /><br />I would like to send you (by e-mail) some ACC and education as well as social skills information that includes some resources, but I don't have any way to contact you. If you would like to receive this information, please send me an e-mail and I will get it to you as soon as possible. Just so you know, we are going out of town and will return back home at the end of next week (May 25, 2013).<br /><br />My e-mail is: hope@aracnet.com<br /><br />Sandie, Mom to 19 year old Matthew <br /><br />P.S. I am also including a link to an ACC Social Skills & Challenges document for your review: <br /><br /><a href="http://agenesiscorpuscallosum.blogspot.com/2009/08/agenesis-of-corpus-callosum-social.html" rel="nofollow">ACC Social Skills & Challenges</a>Sandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-62863353172672995942013-05-14T04:35:50.210-07:002013-05-14T04:35:50.210-07:00hi,
my daughter is 11 years, and have a partiel AC...hi,<br />my daughter is 11 years, and have a partiel ACC, i dont speck english very well but i anderstand<br />she speak et learn at ordinary school, but now she habe a problem with social abalility, she dont have freinds, she dont respect a sociel rules, i search a method to help hem for social ability<br />i am from morocco<br />Fatima, mom to kawtar Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-9874109682231928702010-10-31T11:07:54.834-07:002010-10-31T11:07:54.834-07:00My son is 7 and has complete ACC and hydrocephalus...My son is 7 and has complete ACC and hydrocephalus. He has met all milestones and is a miracle! He has more problems with socail immaturity, meltdowns, ect...He is very talented and is very athletic. We have had several issues with the school system working with us due to transition problems in the morning. This year is better than last year, but there are no predictors to the good mornings or bad. We just take it day by day and are thankful of how lucky he is.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-86667521535980103752010-05-20T11:14:33.793-07:002010-05-20T11:14:33.793-07:00Hi Susan,
Thank you for taking the time to commen...Hi Susan,<br /><br />Thank you for taking the time to comment and for sharing your own personal thoughts and feelings about therapies, developmental delays and dealing with the emotions that happen as a result of trying to juggle all of that and still maintain a balance in your life and family.<br /><br />I love that Madeline brings a smile to your face everyday. What a beautiful blessing from God.<br /><br />Madeline sounds so sweet and there will be many more days when you feel at ease because she WILL keep doing new things.<br /><br />Sandie <br />hope@aracnet.comSandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-29688897242224044282010-05-19T20:00:07.502-07:002010-05-19T20:00:07.502-07:00Hi Sandie,
My daughter Madeline is 16 months with...Hi Sandie, <br />My daughter Madeline is 16 months with C-ACC and Hydrocephalus. Madeline is doing well with fine motor and social skills but she is still behind in gross motor and communication skills. Madeline has pt at home through Birth to 3 program twice a month and she is progressing at her rate but progressing well. I try not to compare and to love her the way she is. I do find my self comparing her to other children her age but I know that she will do things at her own pace. <br />Hearing your story is how I feel with the pain of not knowing if I am doing enough. I work full time and have two other children 2 1/2 and 6 and have guilt of not knowing if I am doing enough. But the days that she does new things I feel at ease. <br />I find that all children who have ACC are not the same and progress at different rates and speeds. I feel blessed to have her in my life. She brings a smile to my face everyday. I just pray for patience and hope to be able to give her the tools she will need to live life full and happy. <br />Thanks again for your post.<br />Susan<br />raymo93@hotmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-29858149857789401942009-06-29T10:29:29.707-07:002009-06-29T10:29:29.707-07:00Rachel,
Thank you for your comment and for the v...Rachel, <br /><br />Thank you for your comment and for the very nice things you wrote. I appreciate how you share your point of view as a therapist. Thank you bunches and bunches for all you do to help Matthew through your music therapy. :) <br /><br />SandieSandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-79551471403379853632009-06-28T21:17:19.826-07:002009-06-28T21:17:19.826-07:00Hi Sandie,
Wonderful post. Just a note from a th...Hi Sandie,<br /><br />Wonderful post. Just a note from a therapist's point of view...it's always hard when interventions work for one child but are completely ineffective for another. But that just provides motivation to look for something that does work, so that every child reaches his or her full potential. You are an amazing mom to Matthew, and he is so lucky to have such love and support in his life.<br /><br />Rachel :)Rachel Rambachhttps://www.blogger.com/profile/11736981779249621711noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-75743954998140629112009-06-28T19:50:02.992-07:002009-06-28T19:50:02.992-07:00Jody,
Thank you so much for your comment
and the ...Jody, <br />Thank you so much for your comment<br />and the things you shared. It definitely is not easy to find that balance that is so necessary. I know God has a glorious plan for Brett's life just like he does for his brothers and for each and every child. :) Thank you again for your input.<br /><br />SandieSandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-82940456487262317092009-06-28T17:34:47.781-07:002009-06-28T17:34:47.781-07:00Thanks for your post Sandie! I bounce between feel...Thanks for your post Sandie! I bounce between feeling like we are doing everything possible for Brett and not enough while trying to balance with activities that don't involve therapy and doctors. It is tough not to compare him to his <br />brothers since he is a triplet, but you are right - whatever Brett's achievements will be are what God has always intended for him. I appreciate the reminder and knowing <br />we are not alone in all of this! Jody<br /><br />http://pbjtime3.blogspot.com/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-42821953354504768182009-06-26T17:31:25.432-07:002009-06-26T17:31:25.432-07:00Araceli,
Thank you for your comment and for
sayin...Araceli, <br />Thank you for your comment and for<br />saying so beautifully something that<br />I failed to mention...that I am also<br />happy for the child who makes leaps <br />and bounds and progresses. I also <br />don't have any bad feelings toward a parent who comments that the therapies are why their child made all the progress because I also know that my own child, Matthew, is where he is today because of the great therapy program he had. I'm sorry that the post caused you to cry. I can relate to your feelings and like we both said...our kids are all different, they learn what they learn when they learn it and all we can do is help them to the best of our abilities, pray and be patient. :)Sandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-30393258269277777892009-06-26T16:02:05.934-07:002009-06-26T16:02:05.934-07:00OH Sandie, I just cried and cried through your ent...OH Sandie, I just cried and cried through your entire post for today. I know exactly what you mean. When Brianna was born my aunt had a baby as well her baby had no brain issues but was extreamly preemie weighed less than a lb and had three surgeries... ok so both my kid and her kid got therapies same thereapies child stim and physical therapies. Her little girl (not that I am mad about it I am very happy for her) is running around talking eating like a typical child. While my daughter is still learing to crawl... yet the samke therapies made a world of difference for her but did little for Brianna? No I honestly belive therapy helps sure but it is the child that does what he/she does at the time they are ready not when a therapist says she should be doing something or when we want them to. Our kids will do exactly what you said what they are meant to do and will do it at the time they are ready. Thanks for this great post sandie.<br /><br />Araceli, mom to 21 month Brianna with complete ACCAnonymousnoreply@blogger.com