tag:blogger.com,1999:blog-1738070699265994888.post2560531612892126077..comments2024-02-19T02:07:53.121-08:00Comments on Agenesis Corpus Callosum: ACC - "The Mystery of the Missed Connection" article - January-February 2013Sandie-Matthew's Momhttp://www.blogger.com/profile/11713990436763822654noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-1738070699265994888.post-16726591422374965122013-08-26T07:32:53.697-07:002013-08-26T07:32:53.697-07:00I absolutely LOVED participating, in a small way i...I absolutely LOVED participating, in a small way in this article. To be honest, I felt some resolution, and recompense and justification in light of my family's harsh treatment and our estrangement. <br /><br />It is my hope we can educate the larger public about ACC, and increase research. We are such a "small population" disorder that we don't get much research attention.<br /><br />I have several scanned (and hard) copies of the article and the online edition of SciAmerican Mind at http://blogs.scientificamerican.com/observations/2012/12/20/patients-reflect-on-life-with-a-common-brain-malformation/<br />Which gave some space for those of us who participated in the article to talk a bit more.<br />Nowhere Manhttps://www.blogger.com/profile/09692745770424918646noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-33190936197622307402013-03-01T13:34:15.510-08:002013-03-01T13:34:15.510-08:00Tania, Thank you for your very kind note. I am so...Tania, Thank you for your very kind note. I am so glad to know that you find the information here about ACC valuable. I am so very thankful to everyone who contributes. <br /><br />~hugs~<br /><br />Sandie Sandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-159624498522124502013-03-01T13:08:22.582-08:002013-03-01T13:08:22.582-08:00thanks for the answer, I found this site today and...thanks for the answer, I found this site today and I am happy to finally have a place to find topics related to ACC .. I love it!!!<br />Hugs..<br /><br />Tania tanymarcela@hotmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-48221714475836364952013-03-01T13:01:04.061-08:002013-03-01T13:01:04.061-08:00Dear Tania,
Thank you for your comment. In repy ...Dear Tania, <br /><br />Thank you for your comment. In repy to your question: Yes, the magazine with the featured article about Agenesis of the Corpus Callosum did come out. It appeared in the January edition and was available for purchase at news stands. You may not easily find the print copy of the January/February magazine on news stands now because it is old (it is a past issue) and their latest March edition is now appearing at news stands. <br /><br />However, you can still purchase a single issue subscription of the January/February online magazine (for online download straight to your computer) by going to the link below. It will allow you to purchase the single January/February past issue (with the ACC story) and read/view it on your computer.<br /><br /><a href="http://www.sciamdigital.com/index.cfm?fa=Products.ViewIssue&ISSUEID_CHAR=AF1D1893-237D-9F22-E8A4E90A91AA7783" rel="nofollow">http://www.sciamdigital.com/index.cfm?fa=Products.ViewIssue&ISSUEID_CHAR=AF1D1893-237D-9F22-E8A4E90A91AA7783</a><br /><br />I hope that you and your baby are doing very well. <br /><br />If you have any questions, please feel free to e-mail me directly. <br /><br />Sandie<br />E-mail: hope@aracnet.com<br /><br />Sandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-25670995723556071772013-03-01T12:27:56.467-08:002013-03-01T12:27:56.467-08:00Sorry for my English.. I wonder if it came out thi...Sorry for my English.. I wonder if it came out this magazine and if possible get the item online? I am the mother of a baby with ACC and am very interested this article. Thank you. TaniaAnonymousnoreply@blogger.com