tag:blogger.com,1999:blog-1738070699265994888.post2712867845989011015..comments2024-02-19T02:07:53.121-08:00Comments on Agenesis Corpus Callosum: Meet Patty - An Adult with ACCSandie-Matthew's Momhttp://www.blogger.com/profile/11713990436763822654noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-1738070699265994888.post-78594558216236694052015-02-15T08:16:55.779-08:002015-02-15T08:16:55.779-08:00Thank you for sharing your story. I have a 20 year...Thank you for sharing your story. I have a 20 year old son with ACC. Unfortunately, 20 years old there wasn't much information out things were limited. Now for him as young adult and still seems to be an adolescent. I've read that these years last a long time for kids with ACC. Can you shed light on that? His money management is not where it should be. Any info you have such as programs. There is limited resources on East Coast and because he did not Graduate from here I had one door shut after another. Its gets frustrating. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-76688566339417875002011-11-03T00:01:06.481-07:002011-11-03T00:01:06.481-07:00Thanks so much for all of the wonderful info you h...Thanks so much for all of the wonderful info you have shared! I have been teaching Pre-K for 5 years and am getting my masters in special needs. Through some professional development classes I learned about activities that pertain to 'crossing the mid-line.' I was very interested in this concept and how it enhances the brain's function. <br /><br />Coincidentally, my only nephew, was very recently diagnosed with ACC, around his 1st birthday. Unfortunately, they live 9 hours away. I have been struggling and researching, wishing I could help and understand better. Which I am sure is nothing compared to the struggles of parents upon hearing this diagnosis! <br /><br />Thank you so much for your story. I can't wait to look into SMART and integrate more of these activities in my classroom, and pass the info along to my brother.forever learnerhttps://www.blogger.com/profile/07194152475934323287noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-29145722586299173642010-05-26T09:45:13.091-07:002010-05-26T09:45:13.091-07:00Lariann and Adelaide Dupont,
Thank you from Patty...Lariann and Adelaide Dupont,<br /><br />Thank you from Patty for taking the time <br />to leave such nice comments. <br /><br /><br />To: Adelaide Dupont,<br />From: Sandie <br /><br />Yes, I also posted a link to Patty's Story<br />on the BrainTalk board in the ACC forum for <br />others to read.<br /><br />SandieSandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-37629924467448962642010-05-26T03:37:46.113-07:002010-05-26T03:37:46.113-07:00Big wow!
Patty: loved reading your story - the go...Big wow!<br /><br />Patty: loved reading your story - the good, the bad and the ugly.<br /><br />I like the SMART pictures very much, and how you describe the activities.<br /><br />It's great to meet you on the Agenesis of the Corpus Callosum website.<br /><br />(Weren't you also on BrainTalk too?)Adelaide Duponthttps://www.blogger.com/profile/01490123934889071074noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-56915383313668631692010-05-22T11:14:17.245-07:002010-05-22T11:14:17.245-07:00Thank you so much for taking the time to interview...Thank you so much for taking the time to interview and be interviewed. My son, Jesse, has P-ACC. Right now he whispers for everything except when he reads or uses word cards in school he will use voice. I am eager to check out the S.M.A.R.T. program! Jesse works with a ST, OT, and psychologist. I intend to copy the exercises and introduce them to Jesse's teacher. Thanks so much!Sister Because of the Savior, Lariannhttps://www.blogger.com/profile/13302171291239317343noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-36434505427139967972010-05-21T22:41:50.284-07:002010-05-21T22:41:50.284-07:00I received an e-mail from Barbara, the mom of a li...I received an e-mail from Barbara, the mom of a little boy who has ACC in Italy. With her permission I am quoting her note here: <br /><br />"you know what, I've just started transleted patty's story into italian, to make her story known also through our italian forum.<br /><br />bye we say "ciao" in italian<br />barbara"<br /><br />Thank you very much Barbara for taking the time to translate Patty's story from English to Italian and for all your hard work so that other people in the ACC Italian forum can read what Patty has to share. It is so nice of you. <br /><br />SandieSandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-8778037698882558872010-05-21T22:34:36.723-07:002010-05-21T22:34:36.723-07:00Thank you very much to Carrie, Trecia and Samantha...Thank you very much to Carrie, Trecia and Samantha from Patty for posting your very nice comments. <br /><br />Trecia, Thank you for your nice note. It was my pleasure and also a privilege to be able to put Patty's story here on the blog for others to read. The thanks definitely belongs to Patty. Like you Trecia, I also hope to hear more from Patty and quite honestly I thought that same thought while I was writing my ending words on her story. Patty has an open invitation to come back and share here anytime and I welcome her input wholeheartedly.<br /><br />Samantha, this comment is from Patty to you: <br /><br />"I would like to be available for correspondence (setting myself up to be busier than I can handle) for Samantha this summer if she wants. I can pretty much say I will be busy through June and most of July. I can correspond with her before that if she wants nuggets of information from me. I am excited to know that there is more people with this in Wisconsin." Patty<br /><br />Samantha, <br /><br />I don't have an e-mail contact for you so if you read this it would be great if you could please e-mail me (Sandie): hope@aracnet.com <br /><br />Thank you.Sandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-6504626553690543722010-05-20T13:59:24.205-07:002010-05-20T13:59:24.205-07:00Hello Patty! Thank you so much for sharing your s...Hello Patty! Thank you so much for sharing your story with us. My name is Samantha, and I also live in Wisconsin. My daughter Nicole is going to be 3 in June and was diagnosed with C-ACC in September of 2009. Nicole is non-verbal at the moment, but is really trying to get some words out! She also has the enlarged ventricles. A lot of her issues with C-ACC seem to have physical side effects. The muscles in her legs are super tight so she goes through a lot of PT to loosen them up. I would love to hear more about the SMART program and am excited to finally find someone else in Wisconsin dealing with C-ACC! <br /><br />Samantha, Mom to Nicole, 3, C-ACC, Colpocephaly, and EpilepsySamanthahttps://www.blogger.com/profile/05165319042898017627noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-31968244389346920322010-05-20T05:00:24.835-07:002010-05-20T05:00:24.835-07:00Hope thank you so much for sharing Pattys story he...Hope thank you so much for sharing Pattys story here and Patty THANK YOU for being open to sharing your story with Hope and thereby to all of us who enjoy Hopes blog. My grandson is 20 mos old with c-acc and "comma shaped" ventricles that I can now picture as TX longhorns LOL. I'm especially interested in the SMART program that you mentioned and will see if Joels therapists have heard of or use it. Again thanks so much for your open natured conversation with Hope and I hope we hear more from you on her blog.<br /><br />Trecia Grandma to Joel David 20 mos c-accTreciahttps://www.blogger.com/profile/02103178683453167264noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-53321251596476075532010-05-19T09:52:27.846-07:002010-05-19T09:52:27.846-07:00Thank you so much for sharing your perspective! I ...Thank you so much for sharing your perspective! I am homeschooling my 7yo DD who has enlarged ventricles (about 3x normal) and hypoplasia of the CC. This will help me (and her)!Carriehttps://www.blogger.com/profile/16068608303307043830noreply@blogger.com