tag:blogger.com,1999:blog-1738070699265994888.post2877077199118547106..comments2024-02-19T02:07:53.121-08:00Comments on Agenesis Corpus Callosum: ACC and Moms-To-Be #5 StorySandie-Matthew's Momhttp://www.blogger.com/profile/11713990436763822654noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-1738070699265994888.post-51670926390425665272010-10-08T23:46:12.488-07:002010-10-08T23:46:12.488-07:00Our little family,
Thank you so much for sharing...Our little family, <br /><br />Thank you so much for sharing your thoughts and feelings about ACC and your daughter. I am so sorry that you have felt so alone for the last 4 years. My heart goes out to you. I am also the mom of a child (a son) who has complete ACC. I can understand and relate to your feelings of how very hard it is to never get any answers about ACC. I am so happy that you feel an urge to want to share your story. And if you may feel comfortable and would like someone to talk to I would love to listen. <br /><br />You can e-mail me anytime: hope@aracnet.com<br /><br />Again, thank you for your lovely heartfelt comment. I hope that you will not ever feel alone anymore because there are many, many families who are there for you who understand what you are feeling and what it is like to have a child who has ACC. <br /><br />Love, <br />SandieSandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-47146980615325618952010-10-08T22:08:24.262-07:002010-10-08T22:08:24.262-07:00We have an almost 4-year old daughter who has comp...We have an almost 4-year old daughter who has complete ACC. I have felt so alone for the last 4 years. All through my pregnancy, the doctors would just say, "We don't know." And that's mostly what we've gotten since then. Our daughter is such a joy in our lives, but it's been so hard never being able to get any answers, or talk to any other parents who have children with ACC. I have searched the Internet trying to find answers, but haven't had much luck. I am so happy to have found this site. Tomorrow I plan to come back and read more. I feel this urge to learn more about the people on this site, and to share our story. I've always wanted to share our story and our sweet girl with others, but I haven't known how to do it. Thank you, thank you for sharing ACC with the world.Our little familyhttps://www.blogger.com/profile/04171032640941217315noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-69581403692855385372010-08-23T18:27:13.565-07:002010-08-23T18:27:13.565-07:00Thank you for all the support as we share our stor...Thank you for all the support as we share our story - and thank you Sandie for your continuing hard work! If we can save one life, educate one parent, reach on doctor or nurse - that would be such a blessing. We did not go through this to keep this amazing stories a secret - there is no shame in sharing. I felt for a while that I wanted to keep it all in, and as Maggie grows, and she amazes me, I just feel this urge to share our story and more importantly, to share how incredible these kids are!!! Love to all!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-30688418766893622252010-08-18T19:45:50.608-07:002010-08-18T19:45:50.608-07:00Kelly...I'm so glad that Katherine's story...Kelly...I'm so glad that Katherine's story moved you and that you are feeling a desire to share your own ACC pregnancy story about your adorable baby girl, Violet. When the time is right for you...you will just know...it will flow from you...and it will be the perfect time.<br /><br />It is a privilege to be able to share each person's story here and I am thankful to Katherine and every other Mom (and Grandma) who took the time to reach out and share their very personal pregnancy stories for others to read.<br /><br />Love, <br />SandieSandie-Matthew's Momhttps://www.blogger.com/profile/11713990436763822654noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-44352619113788476982010-08-18T13:50:38.433-07:002010-08-18T13:50:38.433-07:00Hi Katherine! I must tell you that your story alm...Hi Katherine! I must tell you that your story almost had me in tears. My daughter Nicole was not diagnosed until she was 2 1/2, but I know exactly what you're saying. She inspires me every single day. Your girls are beautiful and you should be a very<br />proud mama! :) I have a poem that was written a while back that explains why special needs children are given to their parents, and I'd like to share it with you at some point. I am also on the list-serv or you can e-mail me at samfrancisco27@ymail.com! Have a great day and thank you so much for sharing your story as it will mean so much to an expecting mother.Samanthahttps://www.blogger.com/profile/05165319042898017627noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-85048211031684549342010-08-18T13:39:44.518-07:002010-08-18T13:39:44.518-07:00Ahh Sandie...this one got me! I hope to wade thro...Ahh Sandie...this one got me! I hope to wade through some left over pregnancy hormones and write our story with Violet. Sometimes it feels too soon and other times I feel the need to get it all out.<br /><br />You're an angel to put this all together!<br /><br />Love,<br />KellyKelly Horsfordhttps://www.blogger.com/profile/12195010953122539358noreply@blogger.comtag:blogger.com,1999:blog-1738070699265994888.post-32202075800499931312010-08-18T09:51:04.875-07:002010-08-18T09:51:04.875-07:00Hi Katherine, Trecia Grandma to Joel David 23 mos ...Hi Katherine, Trecia Grandma to Joel David 23 mos c-acc. Your Maggie is flat out adorable and I enjoyed reading your story and am sorry you had such torment being faced with "the decision" Your story is much like my daughter Cassies, intial dx of hydrocephalus (never had it) fetal MRI total gloom and doom from the Drs when we could see for ourselves on the US that our boy was growing and moving and had the cutest little mouth, his amnio was also clear. I too hope that blogs like Sandies and her willingness to share her story as well as all of ours will bring comfort to "new moms" searching the net when they've been given this scary ACC diagnosis. It would be nice if some Drs took the time to search too and left off with all the termination talk! Best to you and to you Sandie, MUAH for sharing everyones stories here.Treciahttps://www.blogger.com/profile/02103178683453167264noreply@blogger.com