Monday, August 2, 2010

Video about ACC and Social Skills

Dr. Lynn K. Paul interviews the boy who has Agenesis
of the Corpus Callosum in the video.

Dr. Lynn Paul is the founding President of the National
Organization for Disorders of the Corpus Callosum

(NODCC). She is also one of the kindest, most caring
people I have met.

At a Conference in 2001 I watched Lynn Paul lead a panel
of kids who have ACC and then a panel of adults who have
ACC in a questions-answers session that was extremely
interesting and very eye-opening.

Not only is Dr. Lynn Paul a highly professional researcher
on the corpus callosum at Caltech, she is also genuinely
and naturally skilled in interacting with people of all

The video focuses on the social aspect of Agenesis
of the Corpus Callosum and gives insight from Tony (the
boy in the video) and his dad and stepmom's perspective.

ACC Social Skills & Challenges

This article was written with the help and input from
many parents who have a child with Agenesis of the
Corpus Callosum.

Request a copy of this document


  1. my son has complete acc; i'm curious as to whether this is fairly common as to what we can expect from our son?

  2. Jessica,

    Thank you for your comment. Unfortunately, the diagnosis of ACC has such a broad range of effects that there is no way to tell how or to what extent a person who has ACC may be affected. The wait and see aspect of ACC is often times incredibly difficult for many parents (myself included). While there are some more commonly seen things seen in some kids and people who have ACC or a corpus callosum disorder, the expectations of what to expect for a particular child/person who has ACC(especially if they are young) is just not possible.

    I assume that you are wanting to know if you can expect that your son may experience similar social challenges that the boy, Tony, in the ACC video deals with?

    I can tell you that from the things that I have learned and seen other parents write in ACC support groups about their kids who have ACC with respect to social skills, a lot of parents do state that their child has difficulties with socializing and social skills to varying degrees.

    You can read more about what other parents have to say in the ACC Social Skills and Challenges link on this post, if interested.

    The Caltech website that is doing corpus callosum research states:

    "Research indicates that even those individuals with AgCC who function very well have subtle difficulties in social and executive skills that may impact their daily lives."

    Many parents who have a child with ACC state that their child gets along better with kids who are younger or with adults but that they struggle to interact with their peers and kids their own age.

    A very high functioning woman in her 20's who has ACC (who graduated from high school and college) that I know told me that she struggles with social skills; I would not have even known that about her.

    Then there are also adults who have ACC that are married and have kids and who do very well.

    Please let me know if you have any other questions or if you would like more information. Feel free to e-mail me anytime:

    I am happy to help.



I am very interested in reading your comments and
look forward to hearing from you. Thank you.