Did you know there is a book for kids
about ACC?
It's true AND it's adorable too. I have
a copy of the book for my own child,
Matthew, who has complete Agenesis of the
Corpus Callosum.
ACC and Me is a children's book about a
10 year old boy who has Agenesis of the
Corpus Callosum (ACC).
The book is illustrated in beautiful,
colorful drawings and explains what the
corpus callosum is in simple, easy to
understand language.
ACC and Me is a perfect teaching tool
for your child's classroom to help
inform and educate your child's teacher
and classmates about ACC.
ACC and Me is written by Kathryn J. Schilmoeller
and Lynn K. Paul and is illustrated by
Cindy Mauro Reisenauer. All three women
have experience with ACC.
Kathryn J. Schilmoeller, writer, is the
co-founder of the ACC Network as well as the
mom of a grown son with ACC who is high
functioning.
Lynn K. Paul, writer, is the Director of the
Corpus Callosum Research Program at Caltech
as well as the founding President for the
National Organization For Disorders of the
Corpus Callosum. (NODCC).
Cindy Mauro Reisenauer, illustrator, is the
mom of a grown child with ACC.
If you don't have your own copy of ACC and Me
and would like to order the book you can
find out more information below:
How To Get a Copy of ACC and Me:
You can get a free copy of the ACC & Me book by
registering as a first-time member of the NODCC
(National Organization for Disorders of the
Corpus Callosum). The book comes as part of the
welcome packet. There is no fee to join, however,
they do accept donations of any amount.
Register and
become a member of the NODCC online or
by E-Mail.
If you already have the ACC & Me book but
would like additional copies, the NODCC
asks for $10 for each additional ACC & Me
book plus shipping.
Order a copy of the ACC & Me
book
NODCC
PMB 363
18032-C Lemon Drive
Yorba Linda, CA 92886
USA
Phone : (714) 747-0063
FAX : (714) 693-0808
Note: Please be advised that the books are no
longer available through The ACC Network. The
ACC & Me book is only available through the
National Organization for Disorders of the
Corpus Callosum - (NODCC).
Too bad that they don't have it in french(in finnish is maybe even too much to ask lol). I would understand everything but I rather read a book to my kids either in french or in finnish. Well maybe they will publish it someday :)
ReplyDeleteKirsi, mother to Raija 16months p-ACC and other issues
Kirsi,
ReplyDeleteI understand your desire to have the book in your own language for your kids. It's a great idea and I hope that someday it will be published in other languages. :)
Sandie
Sandie,
ReplyDeleteI received a letter from this organization saying they would no longer continue their services due to low funds?? Is this correct I really wish to order the book for Brianna:( Let me know if you know anything
Araceli in California
Mommy to Brianna C-ACC
Hi Araceli,
ReplyDeleteI received an e-mail today from Gary Schilmoeller at the ACC Network with respect to the ACC & Me books. Gary informed me that the ACC Network has a small supply of books to mail out at this time. You can request up to FIVE copies of the book per person. He anticipates that the supply of ACC & Me books will last approximately one month. When they run out of books they will be referring people to the National Organization for Disorders of the Corpus Callosum (NODCC).
There is no formal charge for the ACC & Me book through the ACC Network. The ACC Network sends a donation envelope with the book should someone wish to make a donation to help defray costs.
Sandie