Saturday, March 5, 2011

Got an Idea?

Do you have an idea?

I have ideas about topics to include here on
the Agenesis Corpus Callosum blog and I'm usually
working on one or have some ideas stirring around
in my mind.

But I am
very interested in knowing YOUR Ideas!

What are they?

What do YOU want to see here?

When it comes to Agenesis of the Corpus Callosum,
what type of information are YOU seeking?

It's especially important to me to include a wide
variety of information here that pertains to ACC.

Is there a specific topic here that you like and
want to see more of?

What's not here that you wish was?

School issues?

Speech and Language?

Adults & ACC?

Some other topic?

If you have an idea or several ideas, then here's
a place for you to express them. Share an idea
once or twice or as often as you would like.

Please leave a comment with any ideas that YOU

Go ahead, be the first to share YOUR idea.

I can't wait to read them all.


  1. Here are a few ideas:
    1) Helping your child's teacher to understand his/her ACC diagnosis and any special needs that might arise because of it.

    2) Brain exercises to help your child's brain form connections between the two halves.

    3) Helping your child develop social skills.

    4) A guide to resources for parents with children with disabilities (early intervention, health programs, social security disability, etc.

    Thanks for doing this.


  2. As you well know gauging the effect of ACC early on is very difficult.

    I would love to see some sort of a poll on major milestones in kids with ACC vs the long term outcomes.

    We were presented with ACC diagnosis at 6 months. We often wondered if there was any long term predictability based on the current development. If she is babbling at 10 mo. does that mean anything? That sort of thing. We tried to find when did other ACCers hit their milestones as kids and where they are as adults but the information was very limited.

    These question might be more relevant for a scientific study. I'm throwing it out there just in case you're interested.

    Thanks for everything you do!!! You are the single most resourceful and informative ACC advocate I know.


I am very interested in reading your comments and
look forward to hearing from you. Thank you.