Teacher of ACC Student - Question #1

Alexandra Berube, the former Kindergarten teacher, who taught a student with Agenesis of the Corpus Callosum (and who also tutors the student - who is currently in 3rd grade), has written several guest blog articles here about her teaching experiences.

She also generously answered questions (that I had). Plus, Alexandra informed me that she welcomes questions from you--if you might have a question.

With that being said, I received a question for Alexandra from an aide who is working with a student who has ACC.

With permission I am able to share the aide's question here:

"Hello!

Thank you SO SO much for your articles. They have been such a blessing! I just started working as an aide to a 5 year old girl with Agenesis of the Corpus Callosum. She is in a mainstream Kindergarten classroom but we also do lots of one-on-one sessions with other Special Service therapists. She is a very joyful little girl and a social butterfly. She loves people!

Kindergarten is a full day. Most days she is very, very compliant but lately, we've had a lot of discipline issues in the afternoon. We have a 'Star System' (you receive a star for good behavior or we take away a star for bad behavior) but this doesn't entice her either way. Do you have any suggestions on what you did for discipline with Max?

The afternoons are the hardest because she's so tired. And when she gets tired, she gets frustrated. I'm trying to be proactive by thinking of things that entice her so she'll want to do her work.

Thanks for any info you can provide! I've really appreciated your insights this far" :)

GUEST BLOG POST - Reply to Question

Motivation, Positive Reinforcement, and Reward Systems (and When they Don’t Work)
by Alexandra Berube, bostontutoringservices.com

When *Max was in Kindergarten, our classroom had a sticker chart, and you would receive a sticker for each academic block that you conducted to the best of your abilities. There were four academic blocks each day, with a maximum of four stickers that you could receive per day. I would not remove a sticker for poor behavior, because I do not believe in negative reinforcement. You would either receive a sticker for positive behavior, or not receive a sticker at all. Once you received 30 stickers, you got a prize from the prize bag (filled with items I purchased from the dollar store).

The sticker chart worked really well for most of the students, especially those for whom positive reinforcement made a huge difference. They would gather around the sticker chart eagerly to see how many stickers they had received that day, and it even became a math activity where they would count up to see how many stickers they still needed to get to 30 (this utilizes both addition and subtraction concepts).

For Max, the sticker chart worked sometimes. It worked when he was slightly struggling with an academic task that I knew he was capable of doing, and this extra motivation could propel him towards finishing the goal of completing that task. But it did not do much for behavior modification. If Max found the task too challenging or too boring, a sticker on his chart was not enough compensation for him to want to work on the task at hand. He would roll off his chair onto the ground, toss his pencil, or find any other way to avoid physically doing the task.

I still found the sticker chart worthwhile, because for those skills that I knew he was at the cusp of mastering, it just took a bit more incentive to keep him motivated. But there was always that tipping point where he just wasn't motivated enough by a sticker to actually work.

In cases where the sticker didn't work, it became a game of how much can I change the activity so that it still meets its goal while framing it in a more approachable way for Max? Could I change the topic so that it was still testing the same skill but using a topic that he loved?

Now when we work on triple-digit addition and subtraction, multiplication, geometry, etc., I always frame the activity around a topic that he enjoys. If there are two chicken houses, and three chickens in each chicken house, how many chickens are there? When we were doing story problems for addition and subtraction, where he had to write his own story problems, the problem became about bear attacks: "If three people are attacked by bears, and then four more people are attacked by bears, how many people are attacked by bears altogether?"

When we focused on geometry, addition, and multiplication recently and worked with a floor plan of a home, I mentioned how Max was drawing doors on all of the rooms, and how that would be so great if there were zombies attacking, because there would be so many ways to escape. He started drawing doors all over the place and I asked him each time he drew a door what the measurements would be, and then what the area of that door would be, and then what the perimeter would be. This way he could enter his own world of the interests and topics that excite him, integrating the skills at hand almost so that he does not notice he is learning. He said the doors were 2 feet by 2 feet (small enough that we could escape through them but the zombies would be too tall and wouldn’t know to duck down), and then said, the area is 4! He just multiplied it spontaneously without my asking. The learning became part of the creativity.

Behavior modification in the form of shaping your lessons around the topics that interest your child is usually the most motivating way to keep them on task. Of course, this means altering your curriculum when you're in a larger classroom. But you're just not going to be able to keep a kid on task if they have no connection to the material. Stickers will not be enough to entice them. You can try rewards at the end of the lesson, such as, once you finish this worksheet we will...(Fill in the blank), but this level of forethought is going to be challenging for younger students. They're not going to be able to keep that goal in mind long enough to keep going on the immediate task. The intense frustration around working on a concept that they do not enjoy will overpower that forethought.

As children get older, they will be able to push through this frustration more and more, but for very young children where the behavior modification strategies of sticker charts and positive reinforcement don't do enough, it's best to try to mask an activity by wrapping a favorable interest around it. These children want to learn, and they are so excited when they get to focus on something they are interested in, that with that added effort on the part of the teacher or tutor, they will be able to tackle tasks that should be more challenging than they would normally be able to do. They will push through their frustration in a surprising way and surge forward in their capacity to develop these skills.

*Name has been changed.

About Alexandra Berube

Alexandra is the Managing Director of Boston Tutoring Services, a tutoring company that offers one-to-one in-home tutoring in Massachusetts. She is also a former Kindergarten teacher who also tutors students in grades
K-8, in all subject areas, including test preparation.

--click below for printable version of this article--

Motivation, Positive Reinforcement, and Reward Systems (and When they Don’t Work) - printable version

Watch for an upcoming guest blog post here soon from Teacher/Tutor, Alexandra Berube.

As a teacher and professional tutor, Alexandra plans to share more future guest blog posts here--where she will reveal additional insight into her student who has Agenesis of the Corpus Callosum and how it affects the student's education, and she will also be sharing teaching strategies that have helped her student.**

Do you have a QUESTION for Alexandra?

If while reading Alexandra's articles, about teaching and tutoring her student with Agenesis of the Corpus Callosum, you have a question -- she welcomes you to ask her a question.

**Note: Agenesis of the Corpus Callosum has a very wide range of effects--ranging anywhere from no symptoms--or mild learning disabilities--to severe mental and/or physical challenges. It can sometimes also be seen with other medical conditions, genetic syndromes, chromosomal anomalies and more. Every person with ACC can present differently in terms of their development, cognitive abilities and educational needs.

Each child who has ACC is a unique individual with their own abilities, weaknesses, challenges, motivations, strengths, as well as their own style of learning.

Teacher of ACC Student - Literacy & Communication

GUEST BLOG POST

Literacy and Communication Skills in Kindergarten (Back to the Beginning)
by Alexandra Berube, bostontutoringservices.com

Max worked very hard in the first few months of Kindergarten to make strides in his ability to communicate verbally. As I mentioned previously, Max’s ability to communicate his needs was an area in which we put in a great deal of work. At times, when he got overwhelmed, he would shut down and choose not to listen to teachers who are trying to help him. When upset, *Max would become inconsolable, and have trouble recovering from setbacks. Especially in social situations, such as if someone broke a building of his, he retreated into self-consoling behaviors such as crying and rocking. He would growl or snarl at a peer if he or she upset Max in this way.

I think this is why some behaviors of Agenesis of the Corpus Callosum may be confused with Autism. It looks like the student can’t express themselves, as they regress to either younger behaviors or more ‘primitive’ behaviors like snarling. But they can learn behaviors that will serve them better in social and academic situations, and it’s often up to them to decide if they want to respond or not. As I wrote before, Max would act out, or refuse to communicate or do activities, but he could do them. They were not beyond his capacity. I certainly wouldn’t want to put any blame on a child by saying they ‘choose’ not to respond, but by that I mean, they do have the capacity, it just takes time and a strong sense of trust and comfort level to make them want to do so (as well as emotional maturity, of course). I can only use my experience to state my opinions on this matter, of course--I would not want to generalize onto any students with more limited capacities. I just think that students need time to see what they can do, and it shouldn’t be assumed that something is beyond their ability. This goes for all students.

Moving onto literacy, we practiced a great deal with rhymes, because Max had difficulty recognizing rhymes aurally and generating rhymes orally. He performed much better when asked to match pictures of rhyming objects, because the visual cue allowed him to better process the information. I had small phonics objects, and would use them to give him a visual clue (a cat and a hat, a ship and a clip, etc). This helped quite a bit, and when we did word family activities with pictures of objects (match everything in the ‘at’ family, match everything in the ‘um’ family), he was able to do much better than with just the aural clues. I wanted him to continue to improve in his ability to aurally recognize rhymes, as I had thought that this skill would help him in his reading. But it didn’t work that way.

I had been taught in Graduate School that you needed phonological and phonemic awareness to be able to read. I was concerned his lack of rhyming ability would hold him back. But it didn’t, at all. His reading improved much faster than his aural rhyming skills. Max came into Kindergarten knowing all of his letters and letter sounds, with a solid foundation of how to sound out and decode words. He knew that he had to break down a word and sound out each part in order to read the word. So his reading skills improved rapidly. In turn, the more he learned word families, the more he ‘knew’ what rhymed. His ability to aurally detect rhyme only increased as he learned word families through visual clues and from reading words. He could rhyme once he could read.

In writing skills, with the work Max had been regularly doing with his OT [Occupational Therapist], along with much practice, Max gained the ability to express himself with words and pictures. In September, when asked to write any letter, Max said he could not do it, and did not try. I would have him trace my letters or make lines from one dot to the next in order to form letters. A large part of this was that it is physically challenging for him to use a writing tool, and therefore it is understandable that he would resist the work. By December of Kindergarten, Max was forming letters on his own in order to write words. Similarly, when we began Kindergarten I could not get him to draw any representational figures. He would draw squiggles and circles all over the page, saying he could not draw anything. By December he regularly created representational images on his work. This huge leap shows in some ways that he had the ability all along, and just needed a way to get it out of him. Once he got that from the OT, it was like breaking open a shell so that we could see what had been inside him all along.

*Name has been changed.

About Alexandra Berube

Alexandra is the Managing Director of Boston Tutoring Services, a tutoring company that offers one-to-one in-home tutoring in Massachusetts. She is also a former Kindergarten teacher who also tutors students in grades
K-8, in all subject areas, including test preparation.

Note: "aural"/"aurally" means: relating to the ear or to the sense of hearing.

Would you like to print a copy of this article?

Alexandra has given me permission to convert her article to a pdf format for printing, at the link below:

Literacy and Communication Skills in Kindergarten (Back to the Beginning) - printable version

Watch for an upcoming guest blog post here soon from Teacher/Tutor, Alexandra Berube.

As a teacher and professional tutor, Alexandra plans to share more future guest blog posts here--where she will reveal additional insight into her student who has Agenesis of the Corpus Callosum and how it affects the student's education, and she will also be sharing teaching strategies that have helped her student.**

please be advised: some children who have Agenesis of the Corpus Callosum are also diagnosed with Autism, Autism Spectrum Disorder (ASD) or Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS).

ADDITIONAL INFORMATION AND RESOURCES:

Making a Rhyming Basket - Montessori video:

Rhyming Pictures Printable Game
Note: to download free full-size printable version:
1. click on link above,
2. then on left-hand top of page, click on "File"
3. and then click on "Download"
courtesy of the First Grade a la carte blog.

Or try this printable game with real photograph pictures:
Rhyming Words/Photographs Printable Game

Tip: check out Pinterest for more rhyming words ideas (and other educational ideas, too). You could truly get lost exploring the awesome ideas on Pinterest!

And for activities to Match Word Families with Pictures, consider exploring this idea:
Note: product appears to contain cards only and does not include the plastic pocket chart holder (as pictured).

In the ACC Reading and Comprehension document you can read about other children who have ACC. A few examples include:

Parent of 5 year old child writes:

"She does not get when we give her a list of words to pick out the one that rhymes, she will either pick the one with the same beginning sound or letter or pick a word at random that she knows. If we give her the word bat; a list of words such as cat, ball, dog, hand-she will pick ball because bat and ball go together."

Parent of 12 year old child writes:

"Lexie always struggled with reading. Our first sign of trouble was the fact that she never could rhyme. It was the strangest thing! But as school began I noticed she had such a hard time with those little books. Every single word was as if she had never seen it before...page after page. The same few words would repeat but she would not recognize them. So with each page she struggled just as much as the page before. By first grade we bought Hooked on Phonics.

It interested Lexie so she did it. Loved it. But still she really could not make the jump from the program to real books. Word families meant nothing to her. RAT CAT SAT........Lexie would say HOUSE.....Really? HOUSE???? Again, the rhyming thing never worked for her and that is what word families are. Second grade more of the same. She was reading, I guess. At about a Kindergarten level. No AR yet of course. We did dyslexia programs through the district. She would do FINE according to her dyslexia teacher. By 3rd grade she had graduated out of the program. I kept saying "But she really can't read!" The state assessment finally showed everyone how much she struggled. Of course she failed the state assessment. Her reading comprehension was/is terrible. She is in 6th grade. Reads about on a 3rd grade reading level. She is in regular classes with accommodations. Making straight A's."

Kathyrn Schilmoeller, Ph.D., in her September, 1999 article titled, Educational Suggestions For Children With ACC: A Beginning, wrote:

"People with ACC tend to absorb far more information than they can demonstrate to others in an educational setting by writing or verbalizing. Teachers need to be creative in finding ways for the child to show what he or she has learned. For example, a five-year-old child with ACC was asked to draw a picture of a man. He took a crayon and scribbled across the page. The teacher came to the conclusion that the child had no concept of what a person looked like. However, shortly afterwards when the child was provided different shapes of paper and pieces of masking tape, without prompting from an adult, that same child produced a face complete with eyes, nose, and mouth, and announced, "This is me." The child clearly understood what a face looked like. He simply could not manipulate a crayon well enough to demonstrate his knowledge. Similarly a few years later, this same child "wrote" "I LOVE YOU" with blocks without being prompted. His parents were startled by his skill in "writing" this message because at that point no one realized he could spell that well."

**Note: Agenesis of the Corpus Callosum has a very wide range of effects--ranging anywhere from no symptoms--or mild learning disabilities--to severe mental and/or physical challenges. It can sometimes also be seen with other medical conditions, genetic syndromes, chromosomal anomalies and more. Every person with ACC can present differently in terms of their development, cognitive abilities and educational needs.

Each child who has ACC is a unique individual with their own abilities, weaknesses, challenges, motivations, strengths, as well as their own style of learning.

Teacher of ACC Student - Multiplication

*Alexandra's article below reprinted with permission from Dr. Alicia Holland-Johnson, where it originally appeared as a guest blog posting on her Helping Tutors Become Their Best blog.

Introducing Multiplication to a Student with Different Learning Needs
by Alexandra Berube, bostontutoringservices.com

The basis of my math instruction is always to move from one concept that the student firmly understands and then apply that concept to the next level of mathematic reasoning. In working with my favorite third grade student, I found the opportunity to introduce multiplication to him. This student was born with Agenesis of the Corpus Callosum (a complete or partial absence of the corpus callosum, the band connecting the two hemispheres in the brain), and I wrote about him in a previous blog post. He learns concepts in a completely different order than most people would expect. He is still solidifying his addition and subtraction facts, and adds and subtracts any amount, including one plus one, on his fingers. And yet I know that he is often ready for more advanced concepts, and that these advanced concepts will actually help solidify previous concepts that he is still working on mastering.

In his third grade class, the student is working on geometry, including perimeter of squares. This was the perfect opportunity to introduce multiplication. In a square, all the sides are the same size. If he has a square with the side length of two, then he will do 2×4. I worked with him on this geometry concept for a while with different shapes such as pentagons, hexagons, and triangles: any shape that has sides of equal length. He quickly grasped this concept and then we moved on. I like to use a dry erase board in my instruction, because it's another form of media (‘media’ used loosely, I suppose) than pen and paper, and it allows the student to draw shapes and manipulate the written material in a new way. I had the student make shapes of his own, and we would see how many sides that shape had. We would give each side a length, and then see what the multiplication problem would be as a result.

We then worked on the worksheet I've included a link to here, which shows pictures of groups of objects (for example, four triangles with three stars in each triangle). It asks the students to write an addition problem (so, in this case, three stars four times, so 3+3+3+3) and then the multiplication problem (3×4). He picked this up very quickly, and so we moved on to the last game of the session.

Using a pair of dice, we played a game to visually show the amounts to be multiplied. First we rolled one die, and then drew the dots shown on the die on a piece of paper. We wrote the number value above the dots. Then we wrote a multiplication symbol, and then we rolled the other die, which would act as the 'multiplier.' The second die dictated how many times the first die would be multiplied by. So if the first die was a four, we drew four dots, put a four over it and then a multiplication symbol next to that. Then if the second die was a three, we wrote the number three next to the multiplication symbol, and then drew four dots two more times for a total of three sets of four dots. This way he could see why we were multiplying--we were adding the same number a multiple of times.

He then added all of the dots on the dice and found out that 4X3=12. Below all the dots we wrote 4+4+4 (the addition problem like on the worksheet I just described), to further enforce that multiplication is an extension of addition. He'd already mastered adding groups of numbers, so this was the next logical step. He smoothly transitioned into a student who understands the basis of multiplication. Of course, he's not going to be memorizing his multiplication tables in the near future, but he understands what multiplication is now, and he grasps that it is an extension of addition that applies in real life.

About Alexandra Berube

Alexandra is the Managing Director of Boston Tutoring Services, a tutoring company that offers one-to-one in-home tutoring in Massachusetts. She is also a former Kindergarten teacher who also tutors students in grades
K-8, in all subject areas, including test preparation.

Would you like to print a copy of this article?

Alexandra has given me permission to convert her article to a pdf format for printing, which you can access by clicking on the link below (to share with your child's teacher):

Introducing Multiplication to a Student with Different Learning Needs - printable version

Multiplication Worksheet

Watch for a new guest blog post here next week from Teacher/Tutor, Alexandra Berube.

As a teacher and professional tutor, Alexandra plans to share more future guest blog posts here--where she will reveal additional insight into her student who has Agenesis of the Corpus Callosum and how it affects the student's education, and she will also be sharing teaching strategies that have helped her student.**

ADDITIONAL INPUT FROM PARENTS OF KIDS WITH ACC:

1. "My son learned the [multiplication] tables through Touch Math songs. He still struggles but I see him sort of singing the songs when stuck.
Calculators are truly a kid's best friend!

Now about place value....."

Parent of child with ACC, 5th grade

Touch Math multiplication songs video - on Teacher Tube

http://teachertube.com/viewVideo.php?video_id=210943
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2. "My son, 10 years old, PACC (and other things), has been learning his multiplication tables by making up songs to remember them by. He still struggles if it has been a while since he practiced, but the songs seem to help. He is in 4th grade, and is repeating the year mostly because he has struggled with the times tables, and other math, and logical thinking. We find that anything Kinetic that we can do to help him seems to help."

Note: Kinetic or Kinesthetic Learners - learn through a tactile [touch] hands on, feeling, touching, manipulating objects, moving, doing, experiencing things approach.

Parent of child with partial ACC, 4th grade
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3. "Concerning the use of songs, using familiar tunes and following the pattern of repetition of the words seemed to work well. We used the tune of Frere Jacques to memorize the 9 times table and it worked great. Each part of the verse is repeated twice so you get the following (original song words appear beneath the multiplication version so you can see how they match up):

9 times 1, 9 times 1; 1 times 9, 1 times 9
(“Frere Jacques, Frere Jacques; dorme vou, dorme vou?”)

9 is the answer; 9 is the answer
(“Sonnez la matines; sonnez la matines”)

9 times 1; 1 times 9
(“Ding, ding, dong; ding, ding, dong”)

But once used for the 9s, we couldn’t use it for another multiplication table because the words for the 9s were already tied to this tune in my child's head. Trying to associate the same tune to another multiplication table likely would have resulted in incorrect remembrances. And believe me, we needed to be able to illustrate that it doesn’t matter in what order the numbers appear, the answer will still be the same.

8 X 2 is 16 and 2 X 8 is 16.

She learned the multiplication tables for 2, 5 and 10 fairly quickly. Most kids can count by twos, fives and tens. But she didn’t get the relationship that the answers in the 4 times tables were twice the answers in the 2 times table. So there was a slight disconnect there in terms of relating one set of multiples to another. She did eventually learn all of the multiplication tables (through 10 X 10), but it took a good deal of repetition...and I believe it was truly a rote learning experience. I think she would probably have to have to think pretty hard to explain that what is meant by 6 X 8 is 48 is that there are six groups which each contain 8 items and represent a total of 48 items. But she can pretty reliably give you the correct answer whenever you ask her “What is ‘this number’ times ‘that number’?”

Parent of child with ACC, (in 8th grade now)
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4. "Multiplication and division are tricky. As they progress from learning the basic concept, it becomes necessary to memorize. Kids can "count on" on their fingers to do addition and subtraction, if need be, forever. Honestly, my child [who has partial ACC] was doing it still in algebra, but it was so subtle most people would not notice. It's quick and can be pretty efficient and accurate as well.

Not so for multiplication (and its inverse, division). Counting on becomes tedious, and is far more likely to be erroneous for these operations. It needs lots of "drill and kill" for some kids, and not just those with learning problems. I found several things that worked well in my classroom; I used them for all my students, not just the ones who I suspected would have trouble. In that way, all of them had the same background, and nobody who needed them longer was seen as having to use a crutch. Here are some things that worked for me.

Jewels

Many programs that emphasize hands-on math use jewels. These are strings of plastic beads (they are attached to the strings) that can be cut apart into sets of ones, twos, threes, fours, and fives, each a different color. Kids can easily use them to visually represent multiples of each when beginning to multiply. strings of them are available at teacher stores and in math catalogs. The drawback to me is that there are only five colors, so you can only go to 5 X 5. This may be OK for first graders, and even some in second, but by third you need more.

I solved this problem with Christmas garlands of plastic colored beads. If you can find four more colors besides the ones from the store (gold, silver, pink, purple, perhaps), you are set up to 9 X 9. Kids do have some problems losing place when they count them, but they are physically there so a recount is possible. These jewels are cheap, easy to store, and they reinforce the concept of multiplication as repeated addition. They are great for division as well.

Using the margins

When kids get older, they are expected to do multi-digit multiplication before some of them have their facts memorized. This often results in very slow work, with repeated, excruciating counting on. And it doesn't seem to stick from one time to another. So I taught them to utilize the margins of their papers to write vertical lists of the multiple they are working on, like this:

7
14
21
28
35
etc.

Then, the next time they need a multiple of 7, it's either there, or they can easily extend the list to find it, not having to repeat the same feat again and again. There is usually enough room for 4 lists on each side of the page.

I learned this just by chance, trying to help kids who had a terrible time multiplying. One by one, I noticed over time that fewer and fewer kids needed this technique, as they were realizing it was easier to just memorize facts than go to the trouble of listing. But in the meantime, they were not spending all their class time counting on their fingers. It had the added benefit of showing me instantly when someone had made an error, so I could point it out and help that student get it right. Some people use multiplication charts, but I prefer that the student at least do the computation him/herself at least once, and it seems to stick better when they do. (They can even do it on state tests, when manipulatives are not available.)

Computer Software

This is one area where a computer can really help. There were games available, even some really inexpensive ones, that filled the bill of "drill and kill" without any pain. I'm sure there are many more now. Some will even adapt to a child's level as s/he plays--I highly recommend those. I have been out of it for several years, but look online for some. I'm sure other teachers and other parents are also good sources. If you have the chance to play it before buying, do try it out. You want to make sure that a child can't "game" the system, by using something other than knowledge of facts to succeed at the game--like guessing.

Math replacement units

Marilyn Burns has a great set of math replacement units. These are books that give plans for units of study that cover one topic, such as money or probability, that teachers can use to replace (or supplement) the ones in their texts. I have used several of these at different grade levels, and I highly recommend them.

I used the one on multiplication fairly often, especially when I had average or low third graders and high-achieving second graders, because it was easy to use with them altogether. It's intended for 3rd grade, but it can be used also as enrichment for younger kids and remediation or reinforcement for older ones. She explains a number of activities set up as one- and two-person games (an adult can play with a child) that give practice in the meaning of multiplication. Kids can go back to them again and again for reinforcement. Kind of pricey, I think around $30, but you can likely go to a teacher store and peruse its pages to see if you think it would help you.

Tip: you can find the older out-of-print used version online titled: "Math by All Means: Multiplication, Grade 3" by Marilyn Burns through Amazon and other online sites. This is the version I used while teaching students.

The newer updated version is titled: "Teaching Arithmetic: Lessons for Introducing Multiplication, Grade 3" and can be found at
Math Solutions, a company founded by Marilyn Burns. It is also available (both new and used) through Amazon.

My daughter (who has partial ACC) did have some trouble learning her multiplication facts, but we just practiced them relentlessly. At school she used jewels, and we used the software at home. I hadn't discovered Marilyn Burns or using the margins at that time.

As I recall, memorizing multiplication facts was not as hard for her as addition was. Maybe because she was older. She did have problems remembering how to do multi-digit multiplying and long division, though. I decided she needed more practice. So I had her dad (she was a daddy's girl) write 3 or 4 problems, just for practice on the white board easel we kept in the kitchen, and she'd work on them while we made dinner. She just really needed a lot of practice, over and over, doing the same algorithm. And when she learned it, she needed lots of reinforcement for it to permanently stick."

(Teacher) and Parent of daughter, 24, with partial ACC and septopreoptic holoprosencephaly
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If you would like to share input about multiplication and your child who has ACC, please send me an e-mail and I will be glad to include it here.

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RESOURCES - (for your consideration):

For many kids who have ACC, learning through music is often times a helpful and successful method of teaching.

Multiplication Mountain CD, by Hap Palmer - listen to sound clips of songs

Singing Multiplication Tables CD, by Hap Palmer - listen to sound clips of songs

Tip: check your local library (and online library system) to see if you might be able to borrow the multiplication music CDs by Hap Palmer to try with your child.

**Please Note: Agenesis of the Corpus Callosum has a very wide range of effects--ranging anywhere from no symptoms--or mild learning disabilities--to severe mental and/or physical challenges. It can sometimes also be seen with other medical conditions, genetic syndromes, chromosomal anomalies and more. Every person with ACC can present differently in terms of their development, cognitive abilities and educational needs.

Each child who has ACC is a unique individual with their own abilities, weaknesses, challenges, motivations, strengths, as well as their own style of learning.

Teacher of ACC Student - Parent Input

Alexandra Berube is a former Kindergarten teacher who taught a student with Agenesis of the Corpus Callosum in her classroom. She continues to tutor the student who is currently in 3rd grade, and she has written guest blog posts here about her teaching experience with the student.

After having read Alexandra's guest post on ACC and Communication, I asked her a question in regard to the child's social skills with peers. Alexandra mentioned to me that she would ask the child's parent.

As an unexpected surprise, I received an e-mail this morning from Alexandra who shared word-for-word (with permission) the parent's reply which includes some added input/insight.

The parent of the child/student who has ACC gave permission to share her e-mail reply (to Alexandra) here on this blog for you to read.

E-mail Reply from Parent of Student with ACC to Alexandra Berube: (her child's Kindergarten teacher and current tutor)

"It's actually really interesting reading the posts from your perspective, especially the most recent post where you said you were a "little scared" about the whole situation. In hindsight, I can totally appreciate that. We came to you 2-3 days before the start of school and transformed the dynamic that you would have in your classroom instantly. That's true with any new arrival to a class, but *Max added a whole different dimension since none of us knew what to expect. While he was lacking fine motor and social skills (such as choosing when to speak, rolling on the ground, etc.), he had met every developmental milestone up to that point and even walked at 10 months of age. He also remembered details from stories, asked well thought out questions for a 5-year-old, could identify his letters and most of the letter sounds, and loved to learn new things. He also retained information and could access it. So, I really believed that if he was in the right setting with people that gave him the support he needed, he would learn. My biggest concern for him entering kindergarten was the social piece because he chose who he would talk too. He was completely verbal, but if he didn't know you or wasn't comfortable in the setting, he would not speak and would roll around on the ground. He barely spoke to his aunt until first grade, even though she lived across the street from us and he saw her routinely. He would also "act" things out instead of using his words, but his actions were only understood by immediate family so we were constantly interpreting for him.

I had put together the information packet for the public school kindergarten teacher and had already delivered it to her and had a follow-up conversation with her about working with him. When we went for the public school kindergarten orientation we found out that there were 28 kids in his half-day (2.5 hours) class and no aide. I knew he would be pulled out for speech therapy and occupational therapy during those 2.5 hour sessions and chances are he'd miss something very important since the schedule was so condensed. There was NO way I could send him to that class. I knew he would get lost in a class that size and he'd lose any opportunity that he had to be successful early on in school. I called the director of the Kindergarten program in a panic to find out if there was any availability still in your class. I had really wanted Max to attend your class, but my husband didn't want to pay for kindergarten…the public class size was the turning point for him. I enrolled him in the class with every expectation that you had the skills to work with him because the director of the kindergarten program had told me about the work you'd done during your first year teaching kindergarten. I also knew he would get the 1-on-1 attention he needed since the class size was 1:9 [1 teacher to 9 students] and 6 hours in length.

Many families don't disclose full information about a child's diagnosis because they are afraid that their child will be marginalized in the school system, and many families have stories to back up these fears. I thought a lot about whether or not I would disclose all that I knew before Max started school. I came to the decision that I was much more afraid of someone categorizing him as something he is not - such as autistic or ADHD. Knowing the truth meant that the school district and his teachers could not ignore that my child would need services throughout his academic career. When I made the decision, I had no idea what those services would be, but when I knew what he needed, I wanted them in place. I didn't want to fight for them or jump through hoops because I didn't fully disclose. For me, this decision also meant that I would communicate with a teacher directly about Max's condition. I have never expected that anyone would know what AgCC is or have had past experience working with a child in Max's situation. Therefore, I had to educate his teachers. I put together a packet of information that included research articles about how children with AgCC learn, fact sheets about typical behavior or learning styles of children with AgCC and a powerpoint presentation that gave developmental background about Max from birth. I have also let every teacher know that I expect there will be red flags along the way and I want to know about them when they see them. I am not the parent that is going to disregard a concern or deny that my child might need extra assistance. I know that my child will need more and I want to make sure he gets exactly what he needs. This proactive approach has been very successful this far with his teachers."

*Name has been changed.

Note: "AgCC" = Agenesis of the Corpus Callosum

Thank you very much to *Max's parent for sharing such personal insight (and allowing me to share it in open with you) about her child who has Agenesis of the Corpus Callosum and her feelings with respect to school and her son's educational learning environment and experience.

As a mom myself of a son who has ACC, I can relate very well (as I know many parents can) to how crucial it is to find the right educational placement/setting/environment and teacher for your child. In fact, I believe very strongly that ACC and school/educational placement (as well as any accommodations and services the child who has ACC requires) is so vital in order for a child to thrive academically as well as socially, that I think the topic deserves it's own separate blog post!

About Alexandra Berube

Alexandra is the Managing Director of Boston Tutoring Services, a tutoring company that offers one-to-one in-home tutoring in Massachusetts. She is also a former Kindergarten teacher who also tutors students in grades
K-8, in all subject areas, including test preparation.

Exciting News!!

Watch for another upcoming guest post this week from Alexandra, regarding the student she taught (and tutored) who has Agenesis of the Corpus Callosum, on the topic of Math-Multiplication.

As a teacher and professional tutor, Alexandra plans to share more future guest blog posts here--where she will reveal additional insight into her student who has Agenesis of the Corpus Callosum and how it affects the student's education, and she will also be sharing teaching strategies that have helped her student.**

**Please Note: Agenesis of the Corpus Callosum has a very wide range of effects--ranging anywhere from no symptoms--or mild learning disabilities--to severe mental and/or physical challenges. It can sometimes also be seen with other medical conditions, genetic syndromes, chromosomal anomalies and more. Every person with ACC can present differently in terms of their development, cognitive abilities and educational needs.

Each child who has ACC is a unique individual with their own abilities, weaknesses, challenges, motivations, strengths, as well as their own style of learning.

Teacher of ACC Student - Communication

Alexandra Berube is a former Kindergarten teacher (and professional tutor) who taught a student with Agenesis of the Corpus Callosum in her classroom. She has been tutoring the student who has ACC from Kindergarten through 3rd grade and has very generously written two guest blog posts here regarding her teaching experience with the student, which are titled: How to Support a Student with Unique Learning Needs and From the Beginning.

Her guest post today is a follow-up from an e-mail conversation that took place between Alexandra and I (that was shared on this blog at the end of Alexandra Berube's previous "From the Beginning" guest post). I'm including that e-mail conversation here again below--as a preface to Alexandra's follow-up guest blog post today.

In a recent e-mail exchange I asked Alexandra a question regarding her student and communication, which I am sharing here with you:

"You mentioned that the student with ACC was nonverbal in Kindergarten--and I became curious (as I am sure other parents will be) about his communication needs in the school setting (and in your classroom) and how they were met. With the range of effects of ACC being so broad, there are some children who are nonverbal, some who are verbal, some who are verbal but who have varying degrees of speech/language issues, and some who use gestures, sign language, augmentative communication and/or some verbal words.

I am making an assumption that possibly the student's main form of communication now, as a 3rd grader, is verbal?"

Alexandra's reply (shared with permission):

"I'll send you something this week about his verbal skills--he wasn't actually nonverbal in that he couldn't speak, he just chooses not to a lot (to this day). He uses hand gestures, and we constantly ask him to use his words. He can speak very well and has an extensive vocabulary, and actually has for some time, because he loves to read. But he is frugal with his words when he wants to be, especially if he's not enjoying a task."

GUEST BLOG POST

The Use of Speech by a Student with ACC--When to Speak, When to Stay Quiet, and When to Push
by Alexandra Berube, bostontutoringservices.com

In response to a question about Max's verbal skills entering kindergarten, I'd like to clarify a previous note that I made. I had mentioned that when Max* entered kindergarten he was nonverbal, but he wasn't actually nonverbal in that he couldn't speak, he just often chooses not to (to this day).

Upon entering kindergarten, he very rarely wanted to use his words, and it took a lot of prompting to get him to do so at all. He was much more likely to use them in social settings, especially because all of the other students would interact with him verbally. But when it came to academics, he typically shut down and tried to find any way not to speak. I would ask him to use his words, and each time I would need to make the judgment call about how much it was worth it to push him. Sometimes I could tell that it was a challenging task and there was no need to try and push him to express himself verbally, when a hand gesture suited just fine. For example, if asking him if he had hung up his coat yielded a nod, that was fine.

It is very possible that it requires him more mental energy to focus his ideas to speak, because his brain has to sort through a number of activities to get to that point. The pathways may not be as direct, especially when extracting memories or thinking abstractly (such as mathematical reasoning). In this way, it could be that it is quite tiring for him to formulate his ideas verbally, and so he does so frugally.

However, in academics it is often important for the student to be able to express their ideas verbally, as you can imagine. And I knew Max could do it, because he did so in social situations. So I would tell him that he needed to use his words, and hold him to that, when I felt it was truly necessary for him to do so. I wouldn't put him on the spot in a group activity, but if I was working with him one-on-one, I would say, ‘we need to use our words,’ and wait for him until he did so. If he replied with a gesture, I would repeat my request. Sometimes it would be a sitting match until he gave in. It really just takes feeling out the student to see how much patience they have at the time. If I could tell it was going to enrage him, I wouldn't push it. But other times I would just say, ‘I understand that by nodding your head you are agreeing with me, but let's use our words. How can you tell me your answer with your words?’

Of course, this takes a lot of patience, and judgment to decide when it's worth it to push the student and when to let them stay within their comfort level. But this very conflict is a main aspect of teaching, especially in young children, so it really just comes as part of the territory when working with any student. You scaffold up to a point, just before their frustration level hits, and then try to work them one step forward, bit by bit.

To this day, Max rarely greets me with a verbal hello. His family always wishes he would say hello, but a hug suits me just fine. I know it is important for children to have strong social skills and know how to greet others, but to me, forcing him to say hello does not seem worth the effort, since I already know that he has this skill. It's at times when I need him to show me that he is grasping the concept that verbal skills are required. If I need him to summarize the text we just read, he needs to speak. If we’re playing a game adding sums, he needs to speak. If we're just saying hello and goodbye, what says it better than a hug?

I do not engage in power struggles with children just to win a point. I can’t say that enough.

I should explain the way that he expresses himself when he chooses not to use his words. Most of his gestures are pretty standard, such as nods and shaking of the head. He prefers to tap his fist on the page to signal when he has completed reading a passage, rather than verbally telling me so. He does seem more comfortable using hand gestures when his ideas do not seem to need elaboration (such as, I'm done reading this passage). We never made any attempts at sign language, because he doesn't need help in the ability to express himself verbally. It's just a matter of enforcing that at times he must give in and speak, even if he doesn't want to.

The funny thing is, if you get him started on a topic that he really cares about, he can talk about wolves or chickens all day. He can actually speak very well and has an extensive vocabulary, and has for some time, because he loves to read. Over the years, he has become much more open to speaking during academic tasks, and needs less prompting. I think there is a level of trust that he knows I will appreciate what he has to say, which gives him more purpose in choosing to speak. If a child knows they are being heard, they’ll want to make themselves heard.

*Name has been changed.

About Alexandra Berube

Alexandra is the Managing Director of Boston Tutoring Services, a tutoring company that offers one-to-one in-home tutoring in Massachusetts. She is also a former Kindergarten teacher who also tutors students in grades
K-8, in all subject areas, including test preparation.

Would you like to have a print copy of this article?

Alexandra has given me permission to convert her article to a pdf format, which you can access by clicking on the link below:

The Use of Speech by a Student with ACC--When to Speak, When to Stay Quiet, and When to Push - printable version

Watch for more guest blog posts from Teacher/Tutor, Alexandra Berube.

In a few days I will be sharing another blog post from Alexandra regarding the topic of Math-Multiplication and her student who has Agenesis of the Corpus Callosum.

As a former Kindergarten teacher (who taught a student with ACC) and a professional tutor, Alexandra Berube will share more upcoming guest blog posts here--where she will reveal additional insight into her student who has Agenesis of the Corpus Callosum and how it affects the student's education, and she will also be sharing teaching strategies that have helped her student.**

**Please Note: Agenesis of the Corpus Callosum has a very wide range of effects--ranging anywhere from no symptoms--or mild learning disabilities--to severe mental and/or physical challenges. It can sometimes also be seen with other medical conditions, genetic syndromes, chromosomal anomalies and more. Every person with ACC can present differently in terms of their development, cognitive abilities and educational needs.

Each child who has ACC is a unique individual with their own abilities, weaknesses, challenges, motivations, strengths, as well as their own style of learning.

Speech & Language Issues Associated with ACC - by JoAnn Tully, MS-SLP

*Note: JoAnn Tully is the mother of a grown daughter who has ACC and is also a Speech-Language Pathologist.

Working with Your Speech-Language Pathologist to Evaluate the Communication Skills of the Child with ACC - by Judith Stickles, M.A., CCC-SLP

Kindergarten Teacher of ACC Student tells more

GUEST BLOG POST

From the Beginning
by Alexandra Berube, bostontutoringservices.com

When working with a student with such a rare condition as Agenesis of the Corpus Callosum, it's hard to know what to expect in terms of their learning abilities and how each skill will develop over time. When Max* joined my classroom in the fall of 2008, his mother handed me a packet of materials on ACC and asked me to read them.

It was my second year as a Kindergarten classroom teacher and I had worked with students with learning disabilities before, as well as behavioral problems, but this was definitely a new frontier. I read through the packet, which outlined the deficits that children with this condition may expect to experience. Basically, the student could develop anywhere between completely normally and profoundly mentally retarded. The paperwork literally said it could be anywhere between those two extremes.

I have to admit, I was a little scared. This student would be under my care for the year in which he was expected to learn to read and write, socialize, develop fine motor skills and pencil grip, and a host of other core curriculum subjects. I had a lot of responsibility for the growth of this child, and I did not have an aide or support system to guide me through this process.

And so I started at the beginning. Max quickly began receiving services for OT [Occupational Therapy], which was a remarkable help, as this therapist was able to give me some guidelines on how to instruct Max on handwriting skills while his fine motor skills started to develop. The first month of kindergarten, Max could not make any representational symbols. He could not draw a line, he could not draw a circle, and he certainly could not draw a letter. The OT gave him a lot of great tools, like a special pencil grip that strongly corrected finger placement for writing.

In math, Max began to develop numeracy skills, starting with one-to-one counting relationships (you have to count each object only once, without recounting any objects--this requires strategy and memory). We worked on finding tangible ways for Max to keep track of what he had counted, including drawing dots each time we counted an object--count, draw a dot, count, draw a dot. Of course, the dots became huge inky pools on the page, and he would get distracted as he drew them, but I soon learned that the only way for him to keep track of his math reasoning was to use tangible objects at all times.

With all students, we use these strategies, including manipulatives as well. But Max was not maturing past this level in his ability to retain the skills without physical representation. Other students would begin to visually group objects, maybe counting two at a time, or gain the ability to count without drawing dots to keep track (which is really a scaffolding activity that they should grow out of relatively early in kindergarten). Max needed to double-check his counting every single time, and this became very frustrating for him. He would lose focus, and his behavior would quickly decline.

Max’s behavior while doing tasks that challenged him added another element to the difficulty of instruction. As soon as he got bored, which was very quickly, he would slide off his chair, crawl on the ground, throw the pencil, anything to get out of sitting at a table. And so we would stand by the table, we would walk around the table--I would find any way I could to have him physically touch what we were working on in one finite area. I would break up the activities into shorter and shorter increments. But I never let him get away with not trying.

In later blog posts, I will further describe Max's math development, as well as his literacy development throughout the years. But I think more than anything at this time, it is important to discuss a teacher's role in handling behavior issues in students who are struggling academically, whether they have special needs or not.

You can never, NEVER, let the child think you are giving up on them. If they suspect you think they can't do something, they'll have no incentive to try. I always made sure I held Max accountable for his work, even if his work was completely different than what the other students were doing. He could take breaks, he could work standing up, but he was not an exemption to the basic rules of the classroom, and when he would act out, I made it clear that as soon as he was done he would be getting back to work. He could not distract me from the task at hand, even if that was his goal.

I look forward to continuing to share my experiences working with this extraordinary student, who is now in third grade, performing in all subject levels on grade level. He has made me proud in innumerable ways since I have known him, and I look forward to sharing our experiences with readers.

*Name has been changed.

About Alexandra Berube

Alexandra is the Managing Director of Boston Tutoring Services, a tutoring company that offers one-to-one in-home tutoring in Massachusetts. She is also a former Kindergarten teacher who also tutors students in grades
K-8, in all subject areas, including test preparation.

Would you like to have a print copy of this article?

Alexandra has given me permission to convert her article to a pdf format, which you can access by clicking on the link below:

From the Beginning - printable version

Exciting News!!

Watch for another upcoming guest post from Alexandra, regarding the student she taught (and tutored) who has Agenesis of the Corpus Callosum, which will be posted here on this blog next week.

As a teacher and professional tutor, Alexandra plans to share several more future guest blog posts here--where she will reveal additional insight into her student who has Agenesis of the Corpus Callosum and how it affects the student's education, and she will also be sharing teaching strategies that have helped her student.**

In a recent e-mail exchange I asked Alexandra a question regarding her student and communication, which I am sharing here with you:

"You mentioned that the student with ACC was nonverbal in Kindergarten--and I became curious (as I am sure other parents will be) about his communication needs in the school setting (and in your classroom) and how they were met. With the range of effects of ACC being so broad, there are some children who are nonverbal, some who are verbal, some who are verbal but who have varying degrees of speech/language issues, and some who use gestures, sign language, augmentative communication and/or some verbal words. I am making an assumption that possibly the student's main form of communication now, as a 3rd grader, is verbal?"

I'm including Alexandra's reply here (with permission), for you to read:

"I'll send you something this week about his verbal skills--he wasn't actually nonverbal in that he couldn't speak, he just chooses not to a lot (to this day). He uses hand gestures, and we constantly ask him to use his words. He can speak very well and has an extensive vocabulary, and actually has for some time, because he loves to read. But he is frugal with his words when he wants to be, especially if he's not enjoying a task."

Alexandra Berube's first blog post article can be found here.

**Please Note: Agenesis of the Corpus Callosum has a very wide range of effects--ranging anywhere from no symptoms--or mild learning disabilities--to severe mental and/or physical challenges. It can sometimes also be seen with other medical conditions, genetic syndromes, chromosomal anomalies and more. Every person with ACC can present differently in terms of their development, cognitive abilities and educational needs.

Each child who has ACC is a unique individual with their own abilities, weaknesses, challenges, motivations, strengths, as well as their own style of learning.

ACC & Moms-To-Be Story #18

I am very thankful to all of the Moms and Dads who
want to tell their story about being pregnant and having
a baby with Agenesis of the Corpus Callosum.

On October 12th I received an unexpected e-mail from Elizabeth, who graciously informed me that she would like to share her ACC Pregnancy Story.

With her permission I am including Elizabeth's own words, from her e-mail to me, here for you to read:

"I have been an avid reader of this blog for the past 19 weeks, when my son, Nicolas received his prenatal diagnosis of complete ACC. My husband and I were devastated. We didn't even know what the diagnosis meant, never mind how we were supposed to react. We were scared, ashamed, sad... Reading the stories here helped us to shift our focus to hopeful, strong, and optimistic. Here is my story, so that I can pass along the help that I received here when I needed it the most."

Thank you very much, Elizabeth, for reaching out to other people, for offering hope and for sharing from your heart your son, Nicolas' Story, to help others. It is truly a privilege to be able to post your ACC Pregnancy Story here on the ACC blog and I am eternally grateful to you.

Each story is as unique as each child who has ACC.

I believe in my heart that every ACC story told will ultimately reach out and touch the life of someone else in very special and amazing ways.

Written by Elizabeth

Nicolas' Story

Our journey with Nicolas began in January of 2012. When we found out that we were expecting my husband was terrified. He was 44 and I was 39. Along with our advanced age, I have three children from a previous marriage, and he is a born worrier. He came up with so many “what if” scenarios, that I was almost beginning to regret having decided to try and have a baby together. Somehow, I managed to soothe his worries with my stories about how my other children were born perfect, and that the odds of a problem in the pregnancy were so small, that there was really no reason to even think about them.

At 16 weeks, my doctor had me take a very routine blood test – something called a quad screen. I remembered that with my third pregnancy, I had “failed” this very blood test, had a 1/500 chance of having a Down’s syndrome baby, and been utterly terrified. I warned my husband that this test was very inaccurate, and had a lot of false positive results. That didn’t stop either one of us from being sick over the results that we received. One of my scores was 13.5 times the average result. We had a 1/4 chance of a Down’s baby.

We went for an amniocentesis, which thankfully showed 46 evenly matched chromosomal pairs. Doctors still couldn’t explain my very strange result. Due to “advanced maternal age” and this weird blood screening, it was advised that I have level two sonograms throughout the pregnancy, until they could figure out what was going on. Well, if you look too long for something, you eventually find it.

At my 23 week sonogram, my perinatologist, quite cheerfully announced that something looked “weird with his brain”. After some more scans, he told me that the baby had isolated Agenesis of the Corpus Callosum. He said this with a smile, and then told me it was very serious, and sent me off to the genetic counselor.

I had to call my husband, away for two days at work, to tell him this potentially devastating news. We still didn’t know too much about it, except that the range of outcomes was from asymptomatic to seizures and severe developmental delays. All we could do was hope for the best. We had a fetal MRI which was reviewed by a pediatric neurosurgeon. She confirmed the diagnosis. She recommended that we deal with whatever came our way; and to start by going home to paint the nursery. I found this blog, and read about a lot of great kids, some with tougher roads ahead than others, but all loved and cherished by their families. We decided to become one of those families.

Fast forward to September 27. I am 39 weeks pregnant; and being induced. After a relatively easy and uneventful 8 hour labor, Nicolas decided to be born all at once in 15 minutes. Things got very tense, as his heart rate, which had been stable at around 140 bpm dropped abruptly to 60, then into the 50’s. The neonatologists were already in the delivery room due to Nicolas’ prenatal ACC diagnosis. When he was born blue, silent and still, with his umbilical cord wrapped around his neck and tied in a true knot, they were able to revive him within one minute. While his initial Apgar score was 1, his subsequent ones were 7 and 9. Thank God for that prenatal ACC diagnosis, and the advanced preparation of the neonatologists. After about an hour to bond with his dad and me, he was taken to the NICU for further evaluation. He was delivered back to us within two hours, and since has never been out of our sight.

Other than his ACC diagnosis, and some other possibly related, “garden variety” birth defects (heart murmur and undescended testicle) Nicolas is a perfect baby. I know that he is only two weeks old, and that things may change, but so far every specialist assures us that he looks very likely to develop normally, and to lead a very typical life. He has a cardiologist, and a neurologist. On Monday he will meet his Birth to Three [Early Intervention] team. We expect a urologist in the future. We know that we will have many challenges with our child, and that they may not all be easily met, but already we can’t imagine, or even really remember life without him. His siblings adore him; his grandparents are all on cloud nine. He has brought a real sense of joy to our lives and of completion to our family. He has strengthened the already incredible bonds between my children, my husband and myself. We have a tremendous support system and are confident that we can expect the best possible outcome, no matter what comes our way.

Like I said earlier, I know that we are still only in the beginning of this incredible journey with Nicolas. I know that there are people out there that have lived with ACC, or with their children with ACC that have much more firsthand experience than I do. I just want everyone out there who is receiving their prenatal diagnosis, who is scared, and feeling completely alone and lost, to know that in the long run, the ACC probably doesn’t matter as much as you think.

I will always be sad for Nicolas when he has a particularly difficult challenge to face. I will always wish that he had an easier path, and I will always know that this diagnosis is “unfair” and that he didn’t deserve it. However, I will never forget the joy and relief I felt when I first heard his cry. I will never forget the look of rapture on my husband's face when he turned to me to say that Nicolas was holding his finger so tightly at two minutes old. I will never not love this boy with my whole heart for exactly who he is, not what he has or who he can never be. Children know when they are loved, and they thrive because of it.

-Elizabeth
Mom of Nicolas
October 12, 2012

PS:
Attached is a picture of Nicolas "singing", at nine days old :)

UPDATE: November 1, 2012

"Nicolas, at 5 weeks, is focusing on my face, smiling, and "talking". This after he eavesdropped on a conversation with his [Early Intervention] birth-to-three coordinator, where his dad and I both said that our immediate goal was for Nicolas to be able to bond, make connections, and be a happy, socially functioning part of the family!"

"Nicolas was born on September 27 at 5:06 PM. He weighed in at a puny (for my kids!) 7lbs and 1 oz, and he was only 19 (again - puny!) inches long. He was greeted by ecstatic siblings - 2 brothers 9 and 14 - and a sister 11 - who are convinced that he is going to not only thrive, but be a "super-genius" (their words, not mine!)"

There are many different stories and outcomes of ACC and Moms/Dads-To-Be.

I welcome every story.

Do you:

Have questions?
Need support?
Want information?
Have encouragement to give?

Do you want to share your own ACC story here?

If you do, please E-mail me, (Sandie):
hope@aracnet.com

Want to talk to other moms (and dads) who have been there and understand? Join the ACC Listserv e-mail support group.

I hope to continue sharing more of these ACC and Moms/Dads-To-Be
stories out in the open in an effort to inform, encourage,
support and help other moms (and dads) out there who are being
told that their baby in utero has agenesis of the corpus
callosum.

This ACC and Moms/Dads/Parents-To-Be section will always remain open and available to anyone who would like to tell their story.

Teacher of Student with ACC shares input

Some parents who have a child with Agenesis of the Corpus Callosum choose to hire a tutor to help their child with certain academic areas that many kids with ACC commonly struggle with (i.e. math, reading/language arts, homework), and they mention that hiring a tutor for their child who has ACC turned out to be a great experience, with positive results.

The other evening I was casually reading an article about tutoring and I couldn't believe my eyes when I actually saw (and then realized) that yes, the teacher/tutor actually just stated in writing that:

"one of my Kindergarten students came in with a rare condition: Agenesis of the Corpus Callosum."

Those words, in an article written by a teacher, are probably even more rare than actually having ACC.

I excitedly, and very eagerly, continued to read all that the Kindergarten teacher, Alexandra Berube, wrote in her article with respect to the details of her experience teaching the student with ACC.

I was immediately captured with her style of tutoring, her passion for teaching and her philosophy of taking cues from the child and shifting gears whenever necessary in an effort to fine tune her methods of teaching to meet the child's style of learning. That is a major key to successful learning for many, many children who have Agenesis of the Corpus Callosum.

As I was reading the article, I quickly had a desire to hopefully reprint the Kindergarten teacher, Ms. Berube's, article here on the ACC blog for others to read. Then (as a mom myself of a child who has ACC), I really, really wished that she might share a little more information about her experience teaching the student who has Agenesis of the Corpus Callosum.

Later that evening I sent off an e-mail to Dr. Alise Holland-Johnson, an educator, professor, professional tutor, author (and owner of the blog where Alexandra's original article appeared), requesting permission to possibly re-print Alexandra's article here on the Agenesis Corpus Callosum blog. I also shared with Dr. Holland-Johnson some of my enthusiatic thoughts and my wish.

I went to bed that evening all giddy, like a little kid waiting for Christmas morning.

The next morning I received an e-mail reply from Dr. Holland-Johnson, who very graciously granted permission for me to re-print the guest blog article written by the Kindergarten teacher, Alexandra Berube, and I also received a second e-mail from Alexandra Berube herself (who I didn't even e-mail). I very quickly discovered that Dr. Holland-Johnson had forwared my e-mail on to Alexandra for her to see.

In her e-mail to me, Alexandra surprised my socks off (and fulfilled my wish) by generously agreeing to write another article and elaborate further about her teaching experience with the student who has ACC. I was (and still am) astonished and grateful and elated all at the same time.

Having the opportunity to receive written input from a teacher who had a student with ACC in her class--and be able to share it here on the blog with you--is incredible!

My sincere thanks and appreciation to Dr. Alise Holland-Johnson and also to the Kindergarten teacher (and tutor), Alexandra Berube, who wrote the article titled: "How to Support a Student with Unique Learning Needs", which you can read below for yourself.

*Alexandra's article below reprinted with permission from Dr. Alicia Holland-Johnson, where it originally appeared as a guest blog posting on her Helping Tutors Become Their Best blog.

How to Support a Student with Unique Learning Needs
By Alexandra Berube, bostontutoringservices.com

Teaching my second year of Kindergarten, one of my students came in with a rare condition: Agenesis of the Corpus Callosum. This is a complete or partial absence of the corpus callosum, the band connecting the two hemispheres in the brain. It was not known how deeply this would affect his development, but his learning would clearly be shaped entirely by his brain’s ability to share, process, and store information.

I should explain that I am not a teacher with a Special Education background--I have a Master’s Degree in Early Childhood Education and I am certified in this field; however, I was not trained to teach students with Special Needs beyond how to incorporate modifications into lesson plans and how to read an IEP. I had worked with students with Asperger’s, Sensory Integration Dysfunction, ADD, ADHD, Dyslexia, and Autism, but never had I had complete responsibility for the education of a student with needs such as these.

This student is now in 3rd grade, and I have had the honor of being able to watch him grow, tutoring him on and off ever since he graduated from my classroom. Tutors are often assigned students to work with, not knowing what to expect, and they are being given the opportunity to test the limits of their creativity and their patience. It is truly an opportunity, a gift, to have this chance to bring out what this child has to offer.

Over the years I have watched this student learn everything backwards. By that I mean, in order to hear a rhyme, he had to be able to read the word first: Do cat and hat rhyme? They both visually end in ‘-at,’ so yes. But he couldn’t hear the rhyme.

He can do multi-digit addition and subtraction, with carrying and borrowing. But he has to count on his fingers, even to subtract 3 from 3. Theoretically, he can’t do math facts in his head at all. Each year, we have retaught him how to add and subtract, and he has several strategies that work for him--he physically ‘catches’ the small number and counts up to the big number to subtract, and ‘catches’ the big number and adds the small number from there for addition. It’s tactile, and that’s how his brain allows him to add and subtract. But it does seem illogical to watch a student add 2 plus 3 on his fingers and then see him add 23,908 to 13,208 with carrying, with ease.

This is not how children are supposed to learn, according to common belief. You are supposed to teach children in a certain order, because that’s how their brain develops. But what if their brain needs to develop a different way? What if their brain makes connections in a completely new and circuitous way, that leaves you, the tutor, baffled time and time again? What if that’s okay?

Tutoring a student who learns differently, for any reason, means shedding your beliefs of what is the right order to teach content. It means not drilling in one concept over and over until they get it, because you think they can’t move onto the next concept until they get this one.

All students learn in leaps and bounds, which may mean skipping over one concept, moving onto the next one, and weaving back around, ‘absorbing’ that ‘previous’ concept into their learning schema long after it logically makes sense for them to do so.

Every student deserves the chance to learn at their own pace, and it takes understanding on the part of the tutor that this may be the right way for them.

About Alexandra Berube

Alexandra is the Managing Director of Boston Tutoring Services, a tutoring company that offers one-to-one in-home tutoring in Massachusetts. She is also a former Kindergarten teacher who also tutors students in grades
K-8, in all subject areas, including test preparation.

Would you like to have a print copy of this article?

Alexandra has given me permission to convert her article to a pdf format, which you can access by clicking on the link below:

How to Support a Student with Unique Learning Needs - printable version

Exciting News!!

Watch for Alexandra's upcoming second article regarding the student she taught (and tutored) who has ACC, which will be posted here on this blog next week.

And, if you can believe it, (I'm still in awe), not only is Alexandra willing to write a second upcoming article--she is also, very generously, willing to write and share several more upcoming guest blog articles here in the near future regarding her teaching and tutoring experiences (from Kindergarten to 3rd Grade) with her student who has ACC!

(With her permission) I'm including something here that Alexandra wrote--in one of her e-mails to me--for you to read:

"I started with him the first day of kindergarten, when he was nonverbal and could make no shapes on paper (so he couldn't even draw a line, or a circle, let alone a letter). I could write about any level of his development from that point until now, in 3rd grade. He's on an IEP but not receiving any services at this time because he doesn't need them--he's on grade-level!"

*Please Note: ACC has a very wide range of effects--ranging anywhere from no symptoms--or mild learning disabilities--to severe mental and/or physical challenges. It can sometimes also be seen with other medical conditions, genetic syndromes, chromosomal anomalies and more. Every person with ACC can present differently in terms of their development, cognitive abilities and educational needs.

Each child who has ACC is a unique individual with their own abilities, weaknesses, challenges, motivations, strengths as well as their own style of learning.