This morning, as I was checking my e-mail, I discovered a note to all members of the ACC Listserv--(an Agenesis of the Corpus Callosum e-mail support group that I belong to). This particular e-mail, with a subject line: "Growing up with ACC", put a big smile on my face as I read it, and I couldn't get this blog post up fast enough to share with you here--not to mention get my own hands on a copy of the exciting, new e-book (electronic book).
With his permission, here is the e-mail--directly from him, with the surprising news that I just received, so you can read it for yourself:
"Hi,
My name is Alex Reisenauer I’m 24 yrs old with c-acc. My family joined this list a long time ago and this is my first time posting. After years of thinking about writing a book about what it’s been like to live with ACC and wanting to bring greater awareness about the condition to increase understanding, this month my book, KNOWING ALEX Life with Agenesis of the Corpus Callosum, has come out. I guess you can say it’s taken a life time to write. It’s co-authored by my mother, Cindy and tells how ACC has affected our lives. I have included the description of the book.
BookDescription
Publication Date: September 1, 2012
‘On the day their son was born Rich and Cindy Reisenauer were advised to institutionalize him. Alex had been diagnosed with frightening and unpredictable condition with the indecipherable name of Agenesis of the Corpus Callosum. Simply put, Alex was missing an integral portion of his brain—the band of nerve fibers that connects the two hemispheres.
The Reisenauers chose to take their newborn home to join his two brothers, and face the daily hardships and minor miracles of life with AgCC as a family. Every aspect of Alex’s condition presented developmental, medical, social, educational and vocational challenges. Hard fought for successes highlight his life of achievement.’
Right now its an ebook available at the following retailers: Amazon Kindle,
Apple iBookstore (for iPad), *requires free iBooks app to view.
Barnes & Noble Nook,
Kobo, Copia and Gardners. It will soon be available at Baker & Taylor and Reader (Sony Reader). A print version should be available soon.
Mine is just one story. I hope as awareness for the condition grows more and more stories will be told until ACC is as familiar and understood by the outside world as other conditions like Autism.
Thank you for reading."
Alex
24 c-acc [c-acc=complete agenesis of the corpus callosum]
Would you like to know more about the new e-book titled: KNOWING ALEX: Life with Agenesis of the Corpus Callosum, co-authored by Alex Reisenauer, who has ACC, and his mother, Cindy Mauro Reisenauer?
Well, go ahead and have a look inside the book, where you can view the table of contents as well as read an excerpt.
UPDATE:
If you don't have a Kindle, or other type of e-reader device, but still want to get the e-book and read it--You Can. The e-book is available to read on your computer.
Just download the free Kindle for PC or free Kindle for Mac to your computer. That free download will then allow you to purchase the e-book, KNOWING ALEX: Life with Agenesis of the Corpus Callosum, and have it delivered directly to your computer, for your reading pleasure.
Plus, you can also download other Free Kindle Reading Apps for Kindle Cloud Reader, Smartphones, and Tablets (i.e. iPad & Android Tablet). You don't need to own a Kindle device to read Kindle books.
Wow! I am excited to know that there is a book of this quality, and
in-depth information, available that speaks directly about the diagnosis of ACC, and
makes it incredibly personal, coming from the perspectives and viewpoints of a
mother (and son-who has ACC) team!
Huge congratulations to both of you, Alex and Cindy, on your new book. I can already tell
that this book will speak to so many people who read it....from parents who
have a child with ACC, to teachers/school staff, tutors, to adults who have ACC, to new parents-to-be who are expecting a baby with ACC, as well as doctors and other professionals and more.
As a parent myself of an 18-year-old son, who is completely missing his corpus callosum, (and as someone who is currently reading KNOWING ALEX: Life with Agenesis of the Corpus Callosum, while nodding my head and relating to much of the story), I am certain that this book will be monumental and instrumental in creating a much-needed greater awareness of Agenesis of the Corpus Callosum, a condition that deserves to be better understood and recognized for the sake of the many people who's lives are affected (in a variety of differing ways) on a daily basis.
