This morning I discovered a new guestbook entry from someone who wrote a note on the ACC-Angels Around the World website.
I eagerly read the guestbook message and was thrilled to learn that it was from Brian, an adult who has Agenesis of the Corpus Callosum, who is married...with two adorable little children. He left a lovely note, and he also provided a link to his brand new website where he will reveal (and share stories and insight into his own perspective and experiences) what it is like to have ACC.
It is always enlightening to have the opportunity to hear directly from the adults who have ACC--whether you are the parent of a child with ACC, or another adult who has been diagnosed with ACC.
Being the parent myself of a child who has ACC, and involved in ACC e-mail support groups over the years, I (and many other parents who have a child with ACC) eagerly welcome and seek out the input from the adults themselves who have lived their life having ACC and who are so thoughtfully willing to share their story.
So, if you are as eager as I was, go ahead and open Brian's 'book' and have a look at what he has to say...
A Little Glimpse Into Me - Part One - The Very Early Years
and
Now What Was I Just Saying? What Was I Just Doing?
I very much look forward to reading each new future blog entry that Brian will write and reveal.
Brian's new website is titled ACC & Me
Please consider leaving Brian a message on the comment section on his blog entries if you read his stories, or if you have any questions, or if you are an adult with ACC who can relate to what Brian is saying.
I'm sure that Brian would enjoy and appreciate hearing from you.
