Showing posts with label Communication. Show all posts
Showing posts with label Communication. Show all posts

Monday, November 19, 2012

Teacher of ACC Student - Literacy & Communication


GUEST BLOG POST


Literacy and Communication Skills in Kindergarten (Back to the Beginning)
by Alexandra Berube, bostontutoringservices.com


Max worked very hard in the first few months of Kindergarten to make strides in his ability to communicate verbally. As I mentioned previously, Max’s ability to communicate his needs was an area in which we put in a great deal of work. At times, when he got overwhelmed, he would shut down and choose not to listen to teachers who are trying to help him. When upset, *Max would become inconsolable, and have trouble recovering from setbacks. Especially in social situations, such as if someone broke a building of his, he retreated into self-consoling behaviors such as crying and rocking. He would growl or snarl at a peer if he or she upset Max in this way.

I think this is why some behaviors of Agenesis of the Corpus Callosum may be confused with Autism. It looks like the student can’t express themselves, as they regress to either younger behaviors or more ‘primitive’ behaviors like snarling. But they can learn behaviors that will serve them better in social and academic situations, and it’s often up to them to decide if they want to respond or not. As I wrote before, Max would act out, or refuse to communicate or do activities, but he could do them. They were not beyond his capacity. I certainly wouldn’t want to put any blame on a child by saying they ‘choose’ not to respond, but by that I mean, they do have the capacity, it just takes time and a strong sense of trust and comfort level to make them want to do so (as well as emotional maturity, of course). I can only use my experience to state my opinions on this matter, of course--I would not want to generalize onto any students with more limited capacities. I just think that students need time to see what they can do, and it shouldn’t be assumed that something is beyond their ability. This goes for all students.

Moving onto literacy, we practiced a great deal with rhymes, because Max had difficulty recognizing rhymes aurally and generating rhymes orally. He performed much better when asked to match pictures of rhyming objects, because the visual cue allowed him to better process the information. I had small phonics objects, and would use them to give him a visual clue (a cat and a hat, a ship and a clip, etc). This helped quite a bit, and when we did word family activities with pictures of objects (match everything in the ‘at’ family, match everything in the ‘um’ family), he was able to do much better than with just the aural clues. I wanted him to continue to improve in his ability to aurally recognize rhymes, as I had thought that this skill would help him in his reading. But it didn’t work that way.

I had been taught in Graduate School that you needed phonological and phonemic awareness to be able to read. I was concerned his lack of rhyming ability would hold him back. But it didn’t, at all. His reading improved much faster than his aural rhyming skills. Max came into Kindergarten knowing all of his letters and letter sounds, with a solid foundation of how to sound out and decode words. He knew that he had to break down a word and sound out each part in order to read the word. So his reading skills improved rapidly. In turn, the more he learned word families, the more he ‘knew’ what rhymed. His ability to aurally detect rhyme only increased as he learned word families through visual clues and from reading words. He could rhyme once he could read.

In writing skills, with the work Max had been regularly doing with his OT [Occupational Therapist], along with much practice, Max gained the ability to express himself with words and pictures. In September, when asked to write any letter, Max said he could not do it, and did not try. I would have him trace my letters or make lines from one dot to the next in order to form letters. A large part of this was that it is physically challenging for him to use a writing tool, and therefore it is understandable that he would resist the work. By December of Kindergarten, Max was forming letters on his own in order to write words. Similarly, when we began Kindergarten I could not get him to draw any representational figures. He would draw squiggles and circles all over the page, saying he could not draw anything. By December he regularly created representational images on his work. This huge leap shows in some ways that he had the ability all along, and just needed a way to get it out of him. Once he got that from the OT, it was like breaking open a shell so that we could see what had been inside him all along.

*Name has been changed.


About Alexandra Berube


Alexandra is the Managing Director of Boston Tutoring Services, a tutoring company that offers one-to-one in-home tutoring in Massachusetts. She is also a former Kindergarten teacher who also tutors students in grades
K-8, in all subject areas, including test preparation.


Note: "aural"/"aurally" means: relating to the ear or to the sense of hearing.

Would you like to print a copy of this article?

Alexandra has given me permission to convert her article to a pdf format for printing, at the link below:

Literacy and Communication Skills in Kindergarten (Back to the Beginning) - printable version

Watch for an upcoming guest blog post here soon from Teacher/Tutor, Alexandra Berube.

As a teacher and professional tutor, Alexandra plans to share more future guest blog posts here--where she will reveal additional insight into her student who has Agenesis of the Corpus Callosum and how it affects the student's education, and she will also be sharing teaching strategies that have helped her student.**


please be advised: some children who have Agenesis of the Corpus Callosum are also diagnosed with Autism, Autism Spectrum Disorder (ASD) or Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS).

ADDITIONAL INFORMATION AND RESOURCES:


Making a Rhyming Basket - Montessori video:


Rhyming Pictures Printable Game
Note: to download free full-size printable version:
1. click on link above,
2. then on left-hand top of page, click on "File"
3. and then click on "Download"
courtesy of the First Grade a la carte blog.


Or try this printable game with real photograph pictures:
Rhyming Words/Photographs Printable Game

Tip: check out Pinterest for more rhyming words ideas (and other educational ideas, too). You could truly get lost exploring the awesome ideas on Pinterest!


And for activities to Match Word Families with Pictures, consider exploring this idea:
Note: product appears to contain cards only and does not include the plastic pocket chart holder (as pictured).


In the ACC Reading and Comprehension document you can read about other children who have ACC. A few examples include:

Parent of 5 year old child writes:

"She does not get when we give her a list of words to pick out the one that rhymes, she will either pick the one with the same beginning sound or letter or pick a word at random that she knows. If we give her the word bat; a list of words such as cat, ball, dog, hand-she will pick ball because bat and ball go together."

Parent of 12 year old child writes:

"Lexie always struggled with reading. Our first sign of trouble was the fact that she never could rhyme. It was the strangest thing! But as school began I noticed she had such a hard time with those little books. Every single word was as if she had never seen it before...page after page. The same few words would repeat but she would not recognize them. So with each page she struggled just as much as the page before. By first grade we bought Hooked on Phonics.

It interested Lexie so she did it. Loved it. But still she really could not make the jump from the program to real books. Word families meant nothing to her. RAT CAT SAT........Lexie would say HOUSE.....Really? HOUSE???? Again, the rhyming thing never worked for her and that is what word families are. Second grade more of the same. She was reading, I guess. At about a Kindergarten level. No AR yet of course. We did dyslexia programs through the district. She would do FINE according to her dyslexia teacher. By 3rd grade she had graduated out of the program. I kept saying "But she really can't read!" The state assessment finally showed everyone how much she struggled. Of course she failed the state assessment. Her reading comprehension was/is terrible. She is in 6th grade. Reads about on a 3rd grade reading level. She is in regular classes with accommodations. Making straight A's."


Kathyrn Schilmoeller, Ph.D., in her September, 1999 article titled, Educational Suggestions For Children With ACC: A Beginning, wrote:

"People with ACC tend to absorb far more information than they can demonstrate to others in an educational setting by writing or verbalizing. Teachers need to be creative in finding ways for the child to show what he or she has learned. For example, a five-year-old child with ACC was asked to draw a picture of a man. He took a crayon and scribbled across the page. The teacher came to the conclusion that the child had no concept of what a person looked like. However, shortly afterwards when the child was provided different shapes of paper and pieces of masking tape, without prompting from an adult, that same child produced a face complete with eyes, nose, and mouth, and announced, "This is me." The child clearly understood what a face looked like. He simply could not manipulate a crayon well enough to demonstrate his knowledge. Similarly a few years later, this same child "wrote" "I LOVE YOU" with blocks without being prompted. His parents were startled by his skill in "writing" this message because at that point no one realized he could spell that well."


**Note: Agenesis of the Corpus Callosum has a very wide range of effects--ranging anywhere from no symptoms--or mild learning disabilities--to severe mental and/or physical challenges. It can sometimes also be seen with other medical conditions, genetic syndromes, chromosomal anomalies and more. Every person with ACC can present differently in terms of their development, cognitive abilities and educational needs.

Each child who has ACC is a unique individual with their own abilities, weaknesses, challenges, motivations, strengths, as well as their own style of learning.

Sunday, November 11, 2012

Teacher of ACC Student - Communication


Alexandra Berube is a former Kindergarten teacher (and professional tutor) who taught a student with Agenesis of the Corpus Callosum in her classroom. She has been tutoring the student who has ACC from Kindergarten through 3rd grade and has very generously written two guest blog posts here regarding her teaching experience with the student, which are titled: How to Support a Student with Unique Learning Needs and From the Beginning.

Her guest post today is a follow-up from an e-mail conversation that took place between Alexandra and I (that was shared on this blog at the end of Alexandra Berube's previous "From the Beginning" guest post). I'm including that e-mail conversation here again below--as a preface to Alexandra's follow-up guest blog post today.

In a recent e-mail exchange I asked Alexandra a question regarding her student and communication, which I am sharing here with you:

"You mentioned that the student with ACC was nonverbal in Kindergarten--and I became curious (as I am sure other parents will be) about his communication needs in the school setting (and in your classroom) and how they were met. With the range of effects of ACC being so broad, there are some children who are nonverbal, some who are verbal, some who are verbal but who have varying degrees of speech/language issues, and some who use gestures, sign language, augmentative communication and/or some verbal words.

I am making an assumption that possibly the student's main form of communication now, as a 3rd grader, is verbal?"

Alexandra's reply (shared with permission):

"I'll send you something this week about his verbal skills--he wasn't actually nonverbal in that he couldn't speak, he just chooses not to a lot (to this day). He uses hand gestures, and we constantly ask him to use his words. He can speak very well and has an extensive vocabulary, and actually has for some time, because he loves to read. But he is frugal with his words when he wants to be, especially if he's not enjoying a task."


GUEST BLOG POST


The Use of Speech by a Student with ACC--When to Speak, When to Stay Quiet, and When to Push
by Alexandra Berube, bostontutoringservices.com


In response to a question about Max's verbal skills entering kindergarten, I'd like to clarify a previous note that I made. I had mentioned that when Max* entered kindergarten he was nonverbal, but he wasn't actually nonverbal in that he couldn't speak, he just often chooses not to (to this day).

Upon entering kindergarten, he very rarely wanted to use his words, and it took a lot of prompting to get him to do so at all. He was much more likely to use them in social settings, especially because all of the other students would interact with him verbally. But when it came to academics, he typically shut down and tried to find any way not to speak. I would ask him to use his words, and each time I would need to make the judgment call about how much it was worth it to push him. Sometimes I could tell that it was a challenging task and there was no need to try and push him to express himself verbally, when a hand gesture suited just fine. For example, if asking him if he had hung up his coat yielded a nod, that was fine.

It is very possible that it requires him more mental energy to focus his ideas to speak, because his brain has to sort through a number of activities to get to that point. The pathways may not be as direct, especially when extracting memories or thinking abstractly (such as mathematical reasoning). In this way, it could be that it is quite tiring for him to formulate his ideas verbally, and so he does so frugally.

However, in academics it is often important for the student to be able to express their ideas verbally, as you can imagine. And I knew Max could do it, because he did so in social situations. So I would tell him that he needed to use his words, and hold him to that, when I felt it was truly necessary for him to do so. I wouldn't put him on the spot in a group activity, but if I was working with him one-on-one, I would say, ‘we need to use our words,’ and wait for him until he did so. If he replied with a gesture, I would repeat my request. Sometimes it would be a sitting match until he gave in. It really just takes feeling out the student to see how much patience they have at the time. If I could tell it was going to enrage him, I wouldn't push it. But other times I would just say, ‘I understand that by nodding your head you are agreeing with me, but let's use our words. How can you tell me your answer with your words?’

Of course, this takes a lot of patience, and judgment to decide when it's worth it to push the student and when to let them stay within their comfort level. But this very conflict is a main aspect of teaching, especially in young children, so it really just comes as part of the territory when working with any student. You scaffold up to a point, just before their frustration level hits, and then try to work them one step forward, bit by bit.

To this day, Max rarely greets me with a verbal hello. His family always wishes he would say hello, but a hug suits me just fine. I know it is important for children to have strong social skills and know how to greet others, but to me, forcing him to say hello does not seem worth the effort, since I already know that he has this skill. It's at times when I need him to show me that he is grasping the concept that verbal skills are required. If I need him to summarize the text we just read, he needs to speak. If we’re playing a game adding sums, he needs to speak. If we're just saying hello and goodbye, what says it better than a hug?

I do not engage in power struggles with children just to win a point. I can’t say that enough.

I should explain the way that he expresses himself when he chooses not to use his words. Most of his gestures are pretty standard, such as nods and shaking of the head. He prefers to tap his fist on the page to signal when he has completed reading a passage, rather than verbally telling me so. He does seem more comfortable using hand gestures when his ideas do not seem to need elaboration (such as, I'm done reading this passage). We never made any attempts at sign language, because he doesn't need help in the ability to express himself verbally. It's just a matter of enforcing that at times he must give in and speak, even if he doesn't want to.

The funny thing is, if you get him started on a topic that he really cares about, he can talk about wolves or chickens all day. He can actually speak very well and has an extensive vocabulary, and has for some time, because he loves to read. Over the years, he has become much more open to speaking during academic tasks, and needs less prompting. I think there is a level of trust that he knows I will appreciate what he has to say, which gives him more purpose in choosing to speak. If a child knows they are being heard, they’ll want to make themselves heard.

*Name has been changed.


About Alexandra Berube


Alexandra is the Managing Director of Boston Tutoring Services, a tutoring company that offers one-to-one in-home tutoring in Massachusetts. She is also a former Kindergarten teacher who also tutors students in grades
K-8, in all subject areas, including test preparation.


Would you like to have a print copy of this article?

Alexandra has given me permission to convert her article to a pdf format, which you can access by clicking on the link below:

The Use of Speech by a Student with ACC--When to Speak, When to Stay Quiet, and When to Push - printable version


Watch for more guest blog posts from Teacher/Tutor, Alexandra Berube.

In a few days I will be sharing another blog post from Alexandra regarding the topic of Math-Multiplication and her student who has Agenesis of the Corpus Callosum.

As a former Kindergarten teacher (who taught a student with ACC) and a professional tutor, Alexandra Berube will share more upcoming guest blog posts here--where she will reveal additional insight into her student who has Agenesis of the Corpus Callosum and how it affects the student's education, and she will also be sharing teaching strategies that have helped her student.**




**Please Note: Agenesis of the Corpus Callosum has a very wide range of effects--ranging anywhere from no symptoms--or mild learning disabilities--to severe mental and/or physical challenges. It can sometimes also be seen with other medical conditions, genetic syndromes, chromosomal anomalies and more. Every person with ACC can present differently in terms of their development, cognitive abilities and educational needs.

Each child who has ACC is a unique individual with their own abilities, weaknesses, challenges, motivations, strengths, as well as their own style of learning.


Speech & Language Issues Associated with ACC - by JoAnn Tully, MS-SLP

*Note: JoAnn Tully is the mother of a grown daughter who has ACC and is also a Speech-Language Pathologist.

Working with Your Speech-Language Pathologist to Evaluate the Communication Skills of the Child with ACC - by Judith Stickles, M.A., CCC-SLP

Wednesday, October 24, 2012

Communication - input from parents

The topic of speech-verbal language (or lack thereof), in some children who have ACC, comes up often by concerned parents in the ACC support groups.

Sometimes I discover that there are hidden gems of information buried in some of the larger ACC documents that have been posted on this blog. So, today I decided to revive this buried treasure (found in the ACC-Reading and Comprehension document) involving communication and kids who have ACC.

Below are some of the comments, written by parents of kids with ACC, regarding the topic of verbal language.

First parent writes:

"As a baby Abbie didn't babble. She was a very serious baby. At about age 2 she went from virtually no speech, apart from a few single words and their varied mutations, to almost full sentences. She'd obviously been listening and observing."

Second parent writes:

"Lexie never babbled either. No mamamama or bababababa. Also, she never said uh-oh like all other babies. Same goes with what does a cow say...."mooooo" Nope! She, too, was a very serious baby. At age 2 she had virtually NO words. Then suddenly, somewhere after 2, she began talking. I would not say full sentences over night, but to us it was drastic!"

Third parent writes:

"Ryan started speech therapy at 15 months old. For three long months, once a week, his therapist would go over the signs 'more, all done, open' and maybe 3 or 4 other ones. He couldn't care less! He never seemed to be looking at our hands (of course I kept trying to teach him)... he had lots of fun playing with her, but didn't pick up on the sign thing AT ALL!

At 18 months we were on vacation in Ireland, when his daddy realized he forgot the video camera in the car. So he went to get it. While he was gone, I was tickling and picking up Ryan for about five minutes. Then I stopped. Then we looked at each other and he signed "more". I screamed 'what'? And he did it over and over and over again. Just in time for the video camera! By the end of our two week vacation, he was signing more, all done and open. The amazing part is that it really seemed like he never paid attn to the therapist and to me for the three months we tried to teach him those signs!

Luckily he got kicked out of speech therapy at three yrs old when he said his first 10 word sentence. Speech has never been an issue again."

Fourth parent writes:

"I had worked with him [my son] for one whole year trying to teach him how to say the word "bye bye". We flew to Hawaii and were waiting for our connecting flight to Maui. My husband went outside for something and out of the clear blue tropical sky I heard Matthew say "buh bye" and I nearly did a little dance...the kind of I can't believe he just SAID it dance. My husband was gone and couldn't hear this wonderful new first word that our SEVEN year old child just said. I grabbed my cell phone and called my mom (as Matthew was still saying "buh bye"..."buh bye") and I got her answering machine. I put the phone up to Matthew's mouth and he SAID "buh bye" a few times. My mom heard it later and kept it on her answering machine for years.

While Matthew is still non-verbal with only a handful of words...I continue to help him with speech because he makes a lot of sounds and is trying hard to put simple words together even though he doesn't know he's doing it. I hear him sometimes out of the blue say a word while he is watching TV. For example, he saw a baby on TV and said "bay-bee" clear as day without any problem. I will never give up on him talking and will continue to work with him and believe in all of the things that he is capable of doing no matter how old he is or what anyone else thinks."

Fifth parent (of 16 year old child) writes:

"My son William had a list of things (an entire page long) we were told he "would never do." REALLY? He was 3 years old when we received this list from our "doctor". At 3, he spoke 5 words that were understandable (mama, dada, jojo, baba, & more). His speech was defined as "largely unintelligible sentences" for *MANY* years. Meaning, we were the only ones who truly understood him....that was from age *3* to age ?? (sorry I lost track... but it was a LONG time).

Well, let me tell you what a difference 13 years of advocating for speech services can make...I CANNOT keep him quiet now...he pretty much NEVER shuts up (and I say that with TOTAL LOVE in my heart) and he is *completely* *understandable*. He talks "a mile a minute!" There is NO misunderstanding him now!! He is even described by his teachers as very polite and social. He has no problems with his socialization skills.

Oh yeah one more thing, about that list we received when William was 3 years old...I'm elated to say, he does everything on that list and much more, with ONE exception....he still cannot read, but he will (I have Faith)...and as GOD is my witness, if it is the *VERY* last thing we teach him...HE WILL READ."


ADDITIONAL STORIES FROM PARENTS:

Sixth parent writes:

"My eleven year old son who has complete acc has no problems with his speech per se and never has, he has always passed the milestones like an average child. He can read but it has taken longer, he is at the stage of reading slowly and in a monotone voice, has yet to read with intonation or inflection in his voice. I know this will come with time.

He does sometimes have trouble with his 'train of thought' when trying to relay something to me, he needs extra time and hates to be interrupted, which is understandable.

Otherwise , his communication skills are pretty 'normal' for his age."

Seventh parent writes:

"JM is 4 years old (full ACC), he still speaks no word, just makes some sounds like "tetetete."

However, we realize that he understands and makes requests through some gestures. The hearing test showed hearing perfection.

We continue to stimulate speech, we believe that it will come. At the same time, we will start using alternative communication."

Eighth parent writes:

"Our daughter started babbling dada and mama at 4 months. She was quick to add to her vocabulary list and by one year she had about 25 words. We noticed from an early age that she listened and responded to music in a way that was almost magical. She would seemingly concentrate on the words while the music inspired her to move and dance. She is still rather musically inspired and her concentration while listening to music has transferred to her concentration of listening to language.

She is now 2 1/2 and she speaks in full sentences with near perfect enunciation. She isn't necessarily slow when speaking, but mindful of saying each word properly. When comparing speech to her older sister, my younger daughter has a much more developed vocabulary at her age. (Of course having a sibling close in age undoubtedly helps.)

She also has playful voices for when she's silly, or a "scary monster." She sings songs and can recite nursery rhymes. We feel her grasp of language is more "advanced" than her sisters was when she was her age.

We found out that she was put together "extra specially" while I was pregnant. The doctors prepared us for very involved disabilities with little hope for a bright future. I know there are lots of children with ACC that are mildly affected if at all but we just never heard about those children when we started to learn about ACC. Our daughter has had very typical development and has even been ahead in some areas."

Ninth parent writes:

"I can respond to the delay in talking....My son is 13 years old and was diagnosed with partial acc when he was 9 months old. He received much therapy while he was young (until about 10 years old). He learned to walk at 22 months and communicated his first true interactive word through signing at 24 months. We were told back then that children typically learn to walk before they talk. This held true for my son. He quickly moved from signing to babbling, to words--all while in speech therapy. He was speaking by three years old and remained in speech for articulation issues until he was about 5. He continued with speech therapy (with a few extended breaks) until he was 10 years old to deal with using language for social interactions."


Would you like to include your input about your child who has ACC and communication? Please e-mail me your story and I will gladly post it here on this page.

I welcome and encourage you to share your own comments.


For more information about Agenesis of the Corpus Callosum and speech therapy, check out the document below, which was presented at the 2004 ACC Conference.

Speech & Language Issues Associated with ACC - by JoAnn Tully, MS-SLP

*Note: JoAnn Tully is the mother of a grown daughter who has ACC and is also a Speech-Language Pathologist.